Category Archives: Events

Public meeting in Manchester, 7pm, 25/2/14: Threats to your medical confidentiality

Threats to your medical confidentiality:

Significant changes to how your medical data is handled are happening now. Medical data that was previously under the control of your GP is going to be uploaded to a central database at the Health and Social Care Information Centre, from where it will be shared with companies and  organisations inside and outside the NHS for a range of purposes NONE of which are to with your direct medical care.

WHEN: Tuesday, February 25, 2014 from to

WHERE: Friends Meeting House, Mount Street, behind Central Library, Manchester M2 5NS (map)

Hosted by ORG ManchesterMeetup page

Phil Booth, coordinator of medConfidential, will be on hand to answer all your questions.

Opening Up Patient Records: Pandora’s Box or the Holy Grail? – BCS Primary Health Care Specialist Group conference, 24/25th October

Phil Booth will be speaking on data sharing concerns at the BCS Primary Health Care Specialist Group’s annual conference at the Ettington Park Hotel, Stratford-upon-Avon on 25th October 2013.

The theme of the conference is ‘Opening Up Patient Records – Pandora’s Box or the Holy Grail?’ and confirmed speakers include Kathy Mason (NHS England), Tracey Painter, Geraint Lewis (NHS England), Dr Chris Frith, Maggie Lay (Oxford CSU), Dr Sam Rogers (CCIO Central London), Dr Dai Evans, Dr Luke Twelves, Phil Booth (medConfidential), Prof Iain Buchan (University of Manchester)

Further details and conference programme available from the PHCSG website [PDF].

YOUR HEALTH: YOUR INFORMATION, YOUR CHOICE – conference in central London, 24th April 2013, 9:45 – 16:45

We assume that our medical records are private unless we give permission for information contained in them to be passed on. This is no longer true. New legislation and a raft of policy initiatives threaten the fundamental basis of medical confidentiality.

From the new ‘General Practice Extraction Service’, that will remove identifiable patient data directly from GP records without consent so that it can be passed around and made available to researchers and private companies, to the plans for online medical records and shared health and social care systems, everyone needs to know what is happening.

At this one-day conference in central London you can hear a range of expert speakers explain these new developments and put your questions about the safety and confidentiality of your own records and those of the people whose interests you represent.

Places are limited. If you would like to be offered one of the free slots, please let us know by completing this form.


medConfidential at ORGCon North – 13th April 2013 in Manchester, 11:00 – 17:00

Phil Booth, medConfidential coordinator, will be speaking at ORGCon North on Saturday 13th April, taking part in a panel debate entitled Data Protection regulation: Citizen empowerment or red tape nightmare? along with Javier Ruiz of Open Rights Group, Judith Rauhofer from the University of Edinburgh and David Smith, Deputy Commissioner at the Information Commissioner’s Office.

In the afternoon, medConfidential will be offering an “unconference” session to explain and discuss changes in the NHS that threaten the fundamental basis of medical confidentiality – and what you can do about it! Here’s a quick preview on SoundCloud of what Phil will be talking about.

For more information or to book your ticket for ORGCon North, please visit:

Medical Privacy Under Threat – public meeting in Hebden Bridge, 12th April 2013, 7:30pm start

Phil Booth, medConfidential coordinator, will address a public meeting in Hebden Bridge on Friday 12th April, explaining how changes in the NHS will affect how patient medical records are handled.

He will be joined by Rebecca Taylor MEP, Rebecca will be speaking about her work at the European Parliament. This work involves drawing up new data protection legislation.

The meeting is being chaired by Councillor James Baker and hosted by the NO2ID campaign. It will be held on in the upstairs room of the White Lion in Hebden Bridge, starting at 7.30pm. The meeting is free to attend and all members of the public are invited.

For more information or to register for the event, please visit: