Media coverage

A selection of press and online articles, radio and TV items about the privacy of NHS records.

2017

September 2017

Mass NHS data sharing plan will not allow ‘simple opt out’ despite ministers’ pledges – Daily Telegraph, 19 September 2017

The big data revolution: the high price of a force for good – Daily Telegraph, 16 Septe,ber 2017

Jeremy Hunt to unveil plans for digital-led NHS treatment by 2018 – The Guardian, 11 September 2017

Nosey’ NHS worker accessed 398 patient records without permission at Royal Stoke University Hospital – Stoke Sentinel, 8 Sept 2017

AI has no place in the NHS if patient privacy isn’t assured – Wired, 5th September 2017

August 2017

Documents detail DeepMind’s plan to apply AI to NHS data in 2015 – TechCrunch, 31st August 2017

Building health AIs should be UK ambition, says strategy review – TechCrunch, 31st August 2017

Use of healthcare data must improve, says report – ComputerWeekly, 31st August 2017

UK needs to act urgently to secure NHS data for British public, report warns – The Guardian, 30th August 2017

Pssst… wanna participate in a Google DeepMind AI pilot? Be careful – The Register, 23rd August 2017

Anonymous hacker says they stole 1.2 million NHS patients’ data – Cluley Associates, 22nd August 2017

NHS 1.2 million patient name database hacked ‘to expose weaknesses’ – SC magazine, 21st August 2017

Anonymous hacker claims to have stolen private data on up to 1.2million NHS patients – The Sun, 18th August 2017

Nosey ex-NHS staffer slapped with fine for illegally peeking at medical records – The Register, 14th August 2017

July 2017

Bupa employee stole half a million customers’ health insurance data – DigitalHealth.net, 19th July 2017

Digital service to allow patients to track how their NHS data is used – PublicTechnology.net, 13th July 2017

DH pledges £50m to safeguarding NHS digital security – National Health Executive, 13th July 2017

Government confirms national opt-out for patient data – Digital Health, 12th July 2017

Government response to Caldicott promises further £21m cyber investment – Digital Health, 12th July 2017

Doctors using Snapchat to send patient scans to each other, panel finds – Guardian, 5th July 2017

Google DeepMind report fails to justify use by the NHS, claim privacy campaigners – Techworld, 5th July 2017

Why are we giving away our most sensitive health data to Google? – Guardian, 5th July 2017

The Guardian view on patient data: we need a better approach – Guardian, 5th July 2017

Chief medical officer calls for gene testing revolution – BBC, 4th July 2017

DeepMind held 1.6 million people’s health records unlawfully, but no one’s getting fined for it – Quartz, 4th July 2017

NHS broke the law by sharing 1.6 million patient records with Google’s DeepMind health team – The Sun, 4th July 2017

Royal Free breached UK data law in 1.6m patient deal with Google’s DeepMind – The Guardian, 3rd July 2017

Google DeepMind NHS medical trial broke UK privacy law – BBC, 3rd July 2017

Google DeepMind’s NHS data deal ‘failed to comply’ with law – New Scientist, 3rd July 2017

Royal Society: UK ‘Needs’ New Data Protection Watchdog – Silicon.co.uk, 3rd July 2017

June 2017

The challenges surrounding patient data sharing – The Stack, 27th June 2017

Privacy, consent laws under ‘unprecedented strain’. We need a data-watcher watcher – The Register, 30th June 2017

DeepMind Health inks another 5-year NHS app deal in face of ongoing controversy – TechCrunch, 22 June 2017

The NHS Needs To Get To Grips With Patient Privacy – Huffington Post, 22nd June 2017

May 2017

The Guardian view on Google’s NHS grab: legally inappropriate – Guardian, 17 May 2017

Google DeepMind 1.6m patient record deal ‘inappropriate’ – Guardian, 16 May 2017

Google DeepMind NHS data deal was ‘legally inappropriate’ – New Scientist, 16 May 2017

Google DeepMind’s 1.6m UK medical record slurp ‘legally inappropriate’ – The Register, 16 May 2017

Google received 1.6 million NHS patients’ data on an ‘inappropriate legal basis’ – Sky News, 20:10 BST, Monday 15 May 2017

A leaked letter is battering DeepMind’s arguments that it stayed within health data privacy laws – Quartz, 15 May 2017

Google DeepMind received 1.6 million NHS patient records through a legally inappropriate deal – Business Insider, 15 May 2017

DeepMind NHS health data deal had ‘no lawful basis’ – Tech Crunch, 15 May 2017


Is GP record sharing safe?
– Pulse, 11 May 2017

Cambridge academic calls on health sector to stop using term ‘data ownership’ – PublicTechnology.net, 11 May 2017

NHS deal to hand GP data to immigration officials causing ‘serious risk’ – Pulse, 2 May 2017

April 2017

Public Health England warns of ‘serious risk’ over Home Office data sharing – Independent, 29th April 2017

PHE warns of ‘serious risk’ over Home Office data sharing – Health Service Journal, 28 April 2017

Digital Economy Act becomes law – Kable Government Computing, 28th April 2017

NHS not doing enough to help police prevent terror attacks, warns Met’s counterterrorism chief – Daily Telegraph, 26th April 2017

Government’s information tsar to review data-sharing deal following row over patient confidentiality – PR Week, 26 April 2017

GPs register migrant patients as ‘no fixed abode’ to block Home Office tracking – GP Online, 21 April 2017

Crackdown on migrants forces NHS doctors to ‘act as border guards’ – Guardian, 20 April 2017

Peers: Government needs a credible NHS innovation strategy – and should penalise those that don’t engage – PublicTechnology.net, 5 Apr 2017

Half a million ‘de-identified’ patients records to be shared in Bradford – The Register, 5 April 2017

NHS Digital plans September go-live for citizen identity service – Computer Weekly, 5 Apr 2017

March 2017

TPP sharing furore a reminder of the long shadow cast by care.data – Digital Health, 24 Mar 2017

ICO moves to calm controversy over TTP patient data sharing – Digital Health, 21 Mar 2017

ICO concerned about TPP’s GP IT system’s data sharing compliance – Computer Weekly, 21 Mar 2017

Privacy-unaware GP surgeries put patient records at risk with ‘enhanced data sharing’, claim campaigners – The Inquirer, 20 Mar 2017

Big Read: What does Google DeepMind want with the NHS? – Digital Health, 20 Mar 2017

Security breach fears over 26 million NHS patients – The Daily Telegraph, 17 Mar 2017

Google DeepMind Deal with NHS Contained ‘Inexcusable’ Mistakes – InfoSecurity, 17 Mar 2017

Google’s Deepmind NHS deal ‘inexcusable’, says academic paper – The Register, 16 Mar 2017

Here are all the deals that Google’s AI lab DeepMind has made with the NHS – Business Insider, 16 Mar 2017

DeepMind accused of ‘inexcusable’ failings in its data deal with the NHS – Wired, 16 Mar 2017

“Inexcusable” mistakes made in Google DeepMind and Royal Free NHS data deal – study – Pharma Times, 16 Mar 2017

NHS Scotland launches GP information sharing system – Computer Weekly, 9 Mar 2017

DeepMind says no quick fix for verifying health data access – TechCrunch, 9 Mar 2017

Google’s DeepMind building health data audit tool to counter transparency fears – DigitalHealth.net, 9 Mar 2017

Google’s DeepMind plans bitcoin-style health record tracking for hospitals – Guardian, 9 Mar 2017

Scotland rolls out national patient data extraction scheme – Pulse, 8 March 2017

How trustworthy is NHS Digital? – Open Democracy, 6 March 2017

February 2017

NHS patient letters meant for GPs went undelivered for years – The Register, 27 Feb 2017

NHS accused of covering up huge data loss that put thousands at risk – Guardian, 27 Feb 2017

John Manzoni: Care.data was a ‘misstep’ that ‘put us back a long way’ – PublicTechnology.net, 21 Feb 2017

NHS Digital dodges further ICO data opt out regulation – Health IT central, 15 Feb 2017

NHS Digital avoids regulatory action from ICO over data opt-out errors – Public Technology.net, 13 Feb 2017

ICO rules out regulatory action over NHS Digital data opt out concerns – Kable Government Computing, 10 Feb 2017

Ministers Accused Of “Out-Trumping Trump” Over Use Of Health Data To Track Alleged Illegal Immigrants – Buzzfeed, 10 Feb 2017

Joe’s View: Privacy, where next? – Digital Health.net, 9 Feb 2017

UK government’s huge citizen data grab is go—where are the legal safeguards? – Ars Technica, 9 Feb 2017

NHS Digital “working through” healthcare IoT complexity – Kable Government Computing, 7 Feb 2017

NHS urged to share data so patients can be deported – The Conversation, 6 Feb 2017

The Guardian view on the digital economy bill: a last chance to get it right – The Guardian, 5 Feb 2017

January 2017

Move to implement patient ‘data lake’ scheme – DigitalHealth.net, 30 Jan 2017

The NHS should protect patient confidentiality – Guardian letters, 27 Jan 2017

NHS hands over patient records to Home Office for immigration crackdown – The Guardian, 24 Jan 2017

Lords slam ‘untrammelled’ data sharing powers in Digital Economy Bill – The Register, 20 Jan 2017

Home Office refuses to enforce privacy code on NHS staff using video – The Guardian, 18 Jan 2017

New national NHS patient “data lake” proposed based on STPs – Digital Health.net, 18 Jan 2017

NHS England moots regional-level data collection to support national analytics – Public Technology.net, 19 Jan 2017

Privacy issues drive health IT consumer skepticism: 10 Black Book survey findings – Becker’s Health IT & CIO review (USA), 3 Jan 2017

Understanding the care.data conundrum: New information flows for economic growth – Big Data & Society (Academic journal), 1 Jan 2017

2016

December 2016

The NHS refused to reveal how much it’s paying Google’s DeepMind – Business Insider, 24/12/16

Google app aids London hospital health checks – BBC, 23/12/16

Patients Should Own Their Medical Records! – Health IT central, 12/12/16

NHS Digital sees off patient privacy challenge – DigitalHealth.net, 6/12/16

November 2016

Civil servants under fire over Digital Economy Bill drafting as Parliamentary scrutiny bites – Kable Government Computing, 23/11/16

DeepMind hits back at criticism of its NHS data-sharing deal – Wired, 22/11/16

Google DeepMind, NHS partnership sparks privacy fears – Fierce Healthcare, 22/11/16

DeepMind has signed a major new deal with the NHS despite concerns about patient privacy – Business Insider, 22/11/16

NHS using Google technology to treat patients – BBC News, 22/11/16

Google’s DeepMind agrees new deal to share NHS patient data – New Scientist, 22/11/16

The public get the chance to manage their own medical files – Economist, 19/11/16

Benefits of digital patient tools in the NHS uncertain, says think tank – Computer Weekly, 18/11/16

NHS Digital boss Andy Williams resigns – Public Technology.net, 16/11/16

‘The principle of ownership brings notions of it being someone’s property – therefore sellable’ – Health IT Central, 9/11/16

Consultation outcome over Caldicott proposals to be released soon – Health IT central, 3/11/6

Data Collection And Patient Privacy – A Balancing Act – Health IT central, 2/11/6

NHS England sets up info governance network – UK Authority, 2/11/16

October 2016

Data confidentiality row intensifies ahead of crucial ruling – HSJ, 26/10/16

Opt-outs have been honoured – NHS Digital – DigitalHealth.net, 21/10/16

Working towards a national consent model – DigitalHealth.net, 21/10/16

NHS patients must be taught to share their data, says EU lobby group – The Register, 18/10/16

NHS Digital’s plans for a digital NHS – DigitalHealth.net, 17/10/16

Trust a doctor? Many don’t: Third of people worry the NHS will share their personal data – Daily Mail, 17/10/16

Government claims open data successes – PublicTechnology.net, 17/10/16

The Guardian view on data sharing: the privacy of citizens is being eroded – Guardian, 16/10/16

Google DeepMind has doubled the size of its healthcare team – Business Insider UK, 11/10/16

Caldicott 3: Easy to say, hard to do? – Digital Health, 6/10/16

September 2016

Clinicians key to building public trust around sharing patient data – Computer Weekly, 28/9/16

GP data-sharing scheme rises from the dead – Pulse, 27/9/16

Scrapped NHS care.data ballsup cost taxpayer almost £8m – The Register, 27/9/16

Scrapped care.data ‘cost £8.1m’ claim – Health IT Central, 27/9/16

NHS handed over GP data to 150 groups against patients’ wishes – Pulse, 27/9/16

Data breaches ongoing as NHS Digital pushes opt-outs – DigitalHealth.net, 26/9/16

NHS Digital grapples with thousands of patient data breaches – Health Service Journal, 23/9/16

It’s time for a public debate about data sharing – Prospect, 22/9/16

Building a new social norm for health data – Prospect, 22/9/16

King’s Fund calls for “definitive” NHS digital funding strategy – Kable Government Computing, 22/9/16

Is open data the key to healthcare transformation? – Diginomica, 22/9/16

The NHS’ Digital Ambitions Must Be Bolder – Huffington Post, 21/9/16

Care.Data – A post-mortem – ITProPortal, 19/9/16

UK.gov oughta get its data-sharing house in order before Digital Economy Bill plans – The Register, 19/9/16

Caldicott: future of patient opt-outs a ‘challenge’ – DigitalHealth.net, 8/9/16

Diagnosis.com – patients will be able to download medical files with new digital version of NHS 111 – Daily Mirror, 7/9/16

Government to launch another data harvesting initiative, says “out of date” NHS Digital plan – UKAuthority, 6/9/16

Patient data consent model ‘to be launched in March’ – Health Service Journal, 6/9/16

NHS ‘paperless roadmap’: Fewer dead trees, more data control – The Register, 6/9/16

Shadow of defunct care.data looms over patient record sharing progress – Kable Government Computing, 2/9/16

MPs warn that NHS teams have “significant problems” getting access to data – Diginomica, 2/9/16

Health committee calls for rethink of NHS data sharing practices – Public Technology.net, 1/9/16

‘Significant problems’ with data access in public health – DigitalHealth.net, 1/9/16

August 2016

Government opens consultation on new patient record centralisation plans – Computing, 25/8/16

NHS in consultation for patient records system to replace care.data – V3, 25/8/16

Care.data concerns as new platform proposed – DigitalHealth.net, 25/8/16

Is a care.data replacement waiting in the wings? – HealthIT central, 25/8/16

Stealth plan to sell UK patient health data – Politico, 22/8/16

Do we need to care about the closure of care.data? – BioMed Central, 19/8/16

Care.data is dead – long live care.data? – OpenDemocracy, 19/8/16

Future NHS: What if people controlled their own health data? – GP Magazine, 19/8/16


NHS Care.Data 2.0: What Should It Look Like?
– TechWeek Europe, 18/8/16

Care.data – dead or alive? – Computer Weekly, 8/8/16

Some benefits of digital health to the NHS may be delayed by consent model consultation, says expert – Out-law, 8/8/16

Campaigners fear care.data plans still live – DigitalHealth.net, 4/8/16

Care.data: gone but not forgotten – DigitalHealth.net, 3/8/16

July 2016

Why the closure of care.data is bad news for the NHS and society – Guardian, 19/7/16

Care.data has been scrapped, but your health data could still be shared – The Conversation, 12/7/16

Decision to scrap NHS data grab welcomed in West – Plymouth Herald, 11/7/16

Patients should have more control over how their medical data is used, says Caldicott – Out-law, 7/7/16

How the NHS got it so wrong with care.data – Daily Telegraph, 7/7/16

A viable shot at a better NHS has been killed off by privacy paranoia – Guardian, 7/7/16

UK government takes surgeon’s knife to controversial NHS Care.data scheme – Ars Technica, 7/7/16

Government drops care.data – UKAuthority, 7/7/16

A cynical day to bury the NHS care.data controversy – Diginomica, 7/7/16

Government pulls plug on care.data programme – OnMedica, 7/7/16

NHS England single patient database scrapped – 7/7/16

Controversial mega-database of medical records scrapped over privacy concerns – Independent, 7/7/16

CQC revamps health and social care data security guidance – Kable Government Computing, 6/7/16

UK.gov’s hated Care.data project binned – The Register, 6/7/16

NHS trusts need to prioritise data security, says Fiona Caldicott – Computer Weekly, 6/7/15

NHS England scraps controversial Care.data programme – Computer Weekly, 6/7/15

NHS care.data scheme closed after years of controversy – Wired, 6/7/15

Controversial care.data plans scrapped as reports question how NHS uses data – GP Online, 6/7/16

NHS England scraps care.data project – Computing, 6/7/16

NHS England scraps controversial care.data project – V3, 6/7/16

Controversial £7.5 million NHS database scrapped quietly on same day as Chilcot Report – Daily Telegraph, 6/7/16

NHS to scrap single database of patients’ medical details – Guardian, 6/7/16

UK patients should have greater data slurp opt-out powers – report – The Register, 6/7/16

Case for data sharing ‘still needs to be made to the public’, says Caldicott – National Health Executive, 6/7/16

Prepare for ‘strengthened’ inspections into data security, CQC tells GPs – Pulse, 6/7/16

June 2016

The Home Office Is Accessing Thousands Of People’s NHS Data To Trace Illegal Immigrants – BuzzFeed News, 7/6/16

May 2016

NHS told to strengthen data security after leaks – The Times, 25/5/16

GPhC issues sanctions to Pharmacy2U directors – Chemist & Druggist, 25/5/16

New figures reveal up to 1.5m people opt-out of Care.data – Health IT central, 20/5/16

Consistent minority of patients opting out of having data shared – National Health Executive, 18/5/16

Exclusive: Google’s NHS deal does not have regulatory approval – New Scientist, 13/5/16

UK.gov is about to fling your data at anyone who wants it. How? Why? Shut up, pleb – The Register, 13/5/16

Should the NHS share patient data with Google’s DeepMind? – Wired, 11/5/16

56 Dean Street fined £180,000 by ICO – DigitalHealth.net, 9/5/16

UK data watchdog dishes out brace of fines to NHS after serious breaches – Ars Technica, 9/5/16

Cyber security is critical to the future of the NHS – DigitalHealth.net, 5/5/16

Google’s NHS deal does not bode well for the future of data-sharing – Guardian, 5/5/16

It’s barmy to hand our health secrets to Google – the world’s greediest snooper – Daily Mail, 5/5/16

Google’s DeepMind shouldn’t suck up our NHS records in secret – Guardian, 4/5/16

How to stop Google seeing your private medical history – Business Insider UK, 4/5/16

Google given access to healthcare data of up to 1.6 million patients – The Guardian, 4/5/16

NHS shares medical records of 1.6 million patients with Google as part of data-sharing agreement – The Independent, 4/5/16

If Google has nothing to hide about NHS data, why so secretive? – New Scientist, 4/5/16

Google AI given access to health records of 1.6 million English patients – Ars Technica, 3/5/16

Controversy as Google given access to NHS patient data – The Daily Telegraph, 3/5/16

Google handed health records of 1.6 MILLION NHS patients, sparking privacy fears – The Sun, 3/5/16

Google handed patients’ files without permission: Up to 1.6million records – including names and medical history – passed on in NHS deal with web giant – Daily Mail, 3/5/16

Google given access to London patient records for research – BBC, 3/5/16

Minister says NHS needs more data sharing – UKAuthority, 3/5/16

April 2016

Google AI gains access to 1.2m confidential NHS patient records – The Register, 29/4/16

Revealed: Google AI has access to huge haul of NHS patient data – New Scientist, 29/4/16

Care.data could be delayed again as DH sits on completed reviews – Pulse, 26/4/16

1.2m patients continue to be ignored over objections to record sharing – Pulse, 20/4/16

Guidance on consent and opt-outs for patient data sharing delayed – ComputerWeekly, 20/4/16

HSCIC to commence patient data sharing opt outs this month – Government Computing, 20/4/16

One million patients have opted out of Care.data – The Register, 20/4/16

NHS care.data records still being shared with third parties due to Department of Health delays – ComputerWorld UK, 14/4/16

Pharmacy2U directors face fitness to practise committee over sale of patient data – The Pharmaceutical Journal, 7/4/16

March 2016

Study shows patients support record sharing – UK Authority, 10/3/16

Trust in data use necessary for potential of big data to be realised in health sector, says expert – Out-Law, 9/3/16

Brits still not happy about commercial companies using their healthcare data – The Register, 9/3/16

Hands off our health records, say 1 in 6 UK adults – New Scientist, 9 March 2016

Government to review £500m-worth of Atos contracts after IT failure – The Guardian, 6/3/16

February 2016

‘GP patients won’t be identified from sick note records’ – Pulse, 16/2/16

De-anonymising data should be a criminal offence, says MPs report – The Register, 12/2/16

House of Commons Science and Technology Committee calls for Data Ethics Council – Computer Weekly, 12/2/16

MPs say Whitehall data still stuck in silos – UKAuthority, 12/2/16

Personal data privacy breaches ‘should carry a jail term’ – Daily Mail, 12/2/16

Privacy advocates left out of NHS care.data ‘oversight’ board – The Register, 8/2/16

Health Secretary promises NHS £4.2bn to go ‘digital’ – The Register, 8/2/16

700,000 patients continue to have data sharing objections ignored – Pulse, 5/2/16

January 2016

GPs told to inform patients of ‘state snooping’ on sick note records – Pulse, 24/1/16

NHS Cyber Security ‘Far Weaker Than Thought’ – Tech Week Europe, 20/1/16

Theresa May refuses to say whether UK spies access medical data
BBC, 13/1/16

2015

December 2015

MPs slam mandarins over failed GP IT system – The Register, 31/12/15

GP records database delayed at ‘huge cost’ to taxpayer – The Telegraph, 31/12/15

November 2015

HSCIC to commence patient data opt outs from January – Kable Government Computing, 30/11/15

NHS England to create new technology officer role – Kable Government Computing, 26/11/15

What is the digital legacy of Tim Kelsey? – Digital Health, 26/11/15

Patient opt-outs actioned by January – DigitalHealth, 24/11/15

HSCIC is sharing data of patients who opted out of care.data – Computing, 24/11/15

700,000 care.data opt-outs finally get to come off the database – dataIQ, 24/11/15

NHS patient data-sharing opt-outs must be honoured by January 2016, says ICO – Computer Weekly, 24/11/15

Patients to finally have data-sharing objections honoured – Pulse, 2/11/15

October 2015

GPs’ care.data concerns ‘could resurface’, warns data guardian – Pulse, 28/10/15

Flawed GP data extraction system ‘misspent public money’ – GP Online, 27/10/15

Public trust is key to sharing health data successfully, says Fiona Caldicott – Computer Weekly, 27/10/15

Online pharmacy fined for selling user data to lottery company and others – Sophos Naked Security, 22/10/15

BMA calls for jail sentences after pharmacy found to have sold NHS patient data – GP Online, 21/10/15

NHS underinvests in data capabilities, says Public Health England chief knowledge officer – Computer Weekly, 1/10/15

September 2015

Data privacy fears undermining patient safety, RCGP chair tells Labour conference – GP magazine, 29/9/15

How can we trust the NHS with ‘big data’ if it can’t even get an app store right? – Diginomica, 28/9/15

Why it’s no surprise that NHS accredited smartphone apps are leaking data – Computing, 28/9/15

NHS-approved health apps put patient privacy and health at risk, says study – Ars Technica, 25/9/15

NHS-approved apps found ‘leaking’ ID data – BBC, 25/9/15

NHS apps caught sending unencrypted health data – V3, 25/9/15

What next for NHS Care.data plan after its leader Tim Kelsey quit? – Computer Weekly, 24/9/15

Do you know what happened to your data? – StatsLife, 24/9/15

Tim, Telstra, and the tech takeover of the NHS – Open Democracy, 22/9/15

Care.data – an in-depth check-up on NHS England’s controversial bid to join up health data – Civil Service World, 18/9/15

Tim Kelsey quits NHS, leaving controversial care.data behind – IT Pro, 18/9/15

Care.data head to leave NHS England for private sector role – Civil Service World, 18/9/15

Care.data lead Tim Kelsey resigns from NHS England – Pharma Times, 17/9/15

Tim Kelsey resigns from NHS England – Computing, 17/9/15

Care.data chief Tim Kelsey to leave NHS England – Computer Weekly, 17/9/15

Government adviser leaves controversial NHS data scheme for private sector – Guardian, 17/9/15

Architect of UK’s hated Care.data scheme quits NHS, flees from Britain – The Register, 17/9/15

CCG care.data pilot work continues – Kable Government Computing, 10/9/15

NHS England claims care.data ‘is not paused’ – Computing, 9/9/15

Right, opt out everybody! Hated Care.data paused again – The Register, 8/9/15

Care.data on hold again – DigitalHealth.net, 7/9/15

NHS care.data pilots paused so that it can clear up wording on opt-outs – Computing, 7/9/15

Care.data pilots delayed until January – Civil Service World, 7/9/15

NHS England’s controversial Care.data programme on hold again – Computer Weekly, 7/9/15

Care.data pilot in Somerset paused – Government Computing News, 4/9/15

Care.data ‘paused’ yet again due to confidentiality review – Pulse, 4/9/15

The care.data consensus? A qualitative analysis of opinions expressed on Twitter – BMC Public Health, 2/9/15

August 2015

Patients will resist medical record sharing if NHS bosses ignore their privacy fears – The Conversation, 19/8/15

Care.data is a complete omnishambles, says study into hated scheme – The Register, 12/8/15

Pharmacists hit back at ‘misleading’ patient data article – Pharma Times, 12/8/15

The public is right to worry about data-sharing – Daily Telegraph letters, 12/8/15

Care.data and access to UK health records: patient privacy and public trust – Technology Science, 11/8/15

Sharing all our personal data is stupid and dangerous – Daily Telegraph, 11/8/15

Personal health data belongs to patients – Telegraph editorial, 10/8/15

Boots, Tesco and Superdrug to get access to NHS medical records – Daily Telegraph, 10/8/15

GPs in care.data pilots prepare for scheme’s launch – GP Online, 4/8/15

Care.data director Tim Kelsey: the mastermind behind the NHS GP data project – ComputerWorld UK, 3/8/15

July 2015

Care.data opt out ignored by commissioners, campaigners claim – Health Service Journal, 29/7/15

Patient data must be safeguarded – Guardian Letters, 28/7/15

Almost 2% of patients have opted out of care.data before awareness campaign begins – Pulse, 24/7/15

Just 2% of patients opt out of care.data, says minister – GP Online, 24/7/15

Care.data concerns dismissed as ‘scare stories’ by NHS data chief – ComputerWorld UK, 23/7/15

NHS backs down over private data: Demands for millions of confidential files are abandoned after leaked letter sparks privacy row – Daily Mail, 22/7/15

GP system suppliers data request dropped – Digital Health.net, 22/7/15

NHS boss demands health information for MILLIONS of Britons – and it could identify YOU – Daily Express, 21/7/15

NHS England requests data on GP appointments to support case for seven-day working – Pulse, 21/7/15

NHS circumvents GPs to obtain confidential patient data – Ars Technica, 21/7/15

NHS denies personal information will be shared in appointments row – Computing, 21/7/15

PM plans patient data grab in proposals for seven-day NHS – The Guardian, 21/7/15

Why does Downing Street want details of all your appointments with your doctor? – Our NHS, 21/7/15

Privacy storm over GP visits: NHS official demands details of millions of confidential appointments – Daily Mail, 20/7/15

We must convince the public that researchers need access to medical records – BMJ, 17/7/15

Care.data trial practices unveiled as objection concerns remain – Kable Government Computing, 13/7/15

Sir Tim Berners-Lee seeks revival of plan to open up NHS data – Financial Times, 10/7/15

Wales considers care.data-style record sharing – Pulse, 9/7/15

Just 12 GP practices sign up to test care.data in largest pilot region – Pulse, 8/7/15

NHS IT system for GP data upload slammed for delays and overspend – Computer Weekly, 2/7/15

NHS IT failures mount as GP data system declared unfit for purpose – The Register, 2/7/15

GP data system GPES ‘flawed, delayed and over budget’, audit finds – GP Online, 2/7/15

Audit Office slams IT system for GP records – OnMedica, 2/7/15

NHS IT: Another project over budget, late and with a functionality shortfall – ComputerWorld UK, 2/7/15

GP extraction service was ‘fundamentally flawed’, Government auditors find – Pulse, 2/7/15

IT system for GP records criticised – BBC, 2/7/15

NAO gives thumbs down to GP Extraction Service – UK Authority, 2/7/15

June 2015

Care.data, NHS Choices and now Apps – could it be three failures in a row for Tim Kelsey? – Computing, 30/6/15

Four UK major IT projects headed for disaster, report claims – MISCO News, 30/6/15

NHS care.data still leaks like a sinking ship, but ministers set sail regardless – The Conversation, 30/6/15

“Unachievable” care.data programme should serve as warning to Government-as-a-Platform agenda – Diginomica, 30/6/15

NHS England hits back at highly critical Care.data report – Health Service Journal, 29/6/15

Watchdog: Universal Credit, Care.Data Need ‘Urgent Action’ – TechWeek Europe, 29/6/15

Care.data ‘looks unachievable’, says Whitehall watchdog – Pulse, 29/6/15

NHS patient data plans unachievable, review finds – The Guardian, 26/6/15

Hated Care.data scheme now ‘unachievable’, howls UK.gov watchdog – The Register, 26/6/15

Care.data needs urgent action to succeed, warns watchdog – IT Pro, 26/6/15

Care.data’s MPA ‘red’ risk rating may be out of date – Kable Government Computing, 26/6/15

Care.data is ‘unachievable’ says Major Projects Authority – Computer Business Review, 26/6/15

Care.data is ‘unachievable’, says Whitehall watchdog – ComputerWorld UK, 25/6/15

‘Whitehall, we have a problem with 21 major IT projects,’ warns Major Projects Authority – Computing, 25/6/15

HSCIC confident in care.data – Digital Health.net, 25/6/15

Care.data: main milestones for controversial health data sharing scheme – ComputerWorld UK, 22/6/15

Care.data to restart this month – Local Government Chronicle, 15/6/15

ID card for every child in Scotland – Scottish Express, 14/6/15

NHS faces backlash over Care.data restart in Blackburn – Computer Business Review, 12/6/15

Blackburn with Darwen to lead care.data reboot – UK Authority, 12/6/15

Care.data project to restart later this month – Computing, 12/6/15

Care.data scheme due to restart despite ongoing privacy concerns – IT Pro, 12/6/5

NHS England yet to finalise care.data extraction launch date – Kable Government Computing, 12/6/15

Care.data re-launched this month – Digital Health.net, 11/6/2015

Controversial NHS England Care.data project set to restart – Computer Weekly, 11/6/15

GPs prepare to contact patients individually as care.data is relaunched in some areas – Pulse, 10/6/15

NHS to hunt out patients who are costing too much: Bosses will trawl records to identify most frequent visitors to A&E – Daily Mail, 9/6/15

GP records to be shared without patient permission to tackle ‘high cost’ patients – Pulse, 9/6/15

Up to 700,000 NHS patients had their data released, despite opting out – Ars Technica, 9/6/15

NHS Patients’ Data Shared Against Their Wishes – Sky News, 6/6/15

Data on 700,000 NHS patients ‘available to third parties’: Details being shared despite patients asking for them to be kept secret – Daily Mail, 6/6/15

Confidential NHS patient data being passed on ‘against wishes’ – ITV, 6/6/15

NHS data passed on ‘against wishes’ – Press Association, 6/6/15

Nearly 1 million patients could be having confidential data shared against their wishes – Daily Telegraph, 6/6/15

NHS details released against patients’ wishes, admits data body – Guardian, 6/6/15

Care.data loose ends need tying up now – Health Service Journal, 4/6/15

NHS fails to cope with care.data opt outs – UKAuthority, 5/6/15

Care.data: the economic value of data versus the public interest? – Stats Life, 3/6/15

NHS blows £5 MILLION on delayed Care.data – The Register, 2/6/15

Baroness Ludford: Respond to the 700,000 requests to opt out of medical data sharing – Politics Home, 2/6/15

May 2015

Survey highlights patients concerns about sharing personal health data – Cambridge Network, 14/5/15

Delay to 700,000 patient opt-outs – DigitalHealth.net, 12/5/15

What are the IT headaches facing the next government? – ComputerWorld UK, 7/5/15

Local GP data sharing schemes ‘open practices up’ to legal challenges – Pulse, 6/5/15

NHS overriding 700,000 patient opt-outs to GP data being shared – Pulse, 5/5/15

Could Google look after our NHS data? – Daily Mail, 4/5/15

April 2015

NHS tops the list for serious data breaches last year – ComputerWorld, 9/4/15

March 2015

EU ministers back data privacy changes – eHealth insider, 23/3/15

NHS England has some sneaky plans for Care.data acceleration – The Register, 20/3/15

Ethical frameworks and APIs dominate open data discussion – Kable Government Computing, 20/3/15

MP calls for halt to care.data roll-out – Birmingham Press, 17/3/15

Data advisory group to disband – eHealth insider, 16/3/15

Privacy and the 100,000 Genome Project – Guardian, 10/3/15

NHS care.data – a horribly botched operation – Computing, 8/3/15

CQC could use care.data information for intelligent monitoring – Pulse, 6/3/15

All power to the LibDems for standing up for our liberties in database debate – The Herald, 5/3/15

Maternity leave minister returns to help SNP avoid ID database defeat – Daily Telegraph, 4/3/15

MSPs debate ‘super ID database’ plans – BBC, 4/3/15

Time to wake up to this grave threat to our privacy – The Herald, 4/3/15

Scottish Government wins ID database showdown – The Scotsman, 4/3/15

Independent oversight body for care.data to be scrapped – Pulse, 4/3/15

NHS Care.data ‘can never be 100 per cent secure’ – Computing, 3/3/15

NHS England to launch care.data standards testing within weeks – Kable Government Computing, 3/3/15

Care.data on hold until election – eHealth Insider, 2/3/15

Watchdog: SNP plan for super-database could create national ID number for every Scot – Herald, 2/3/15

Scottish identity database plans carry privacy risk, ministers warned – Guardian, 2/3/15

Development of a Scottish Population Register/ID Card Scheme is subject to ICO criticism – Hawktalk, 2/3/15

February 2015

Scottish plans for central identity database spark privacy criticism – Guardian, 25/2/15

HSCIC promises not to count care.data opt outs at GP practice level – Pulse, 23/2/15

Plans to share NHS data with tax agency ‘risk breaking down trust’ – STV, 22/2/15

Labour calls for NHS data sharing plans to be dropped – The Courier, 22/2/15

NHS: Campaigners attack plans to share patients’ personal data with taxman – Daily Record, 22/2/15

Care.data 2.0: why its ‘Big Data’ approach should be reconsidered – Stats Life, 16/2/15

No date for care.data report response – eHealth Insider, 11/2/15

Majority of care.data pilots expected to begin ‘before May’ – Pulse, 10/2/15

Clarification concerns leave Caldicott unsure of care.data timing – Kable Government Computing, 10/2/15

Shed light on big data – ethics report – 4/2/15, eHealth Insider

Medical researchers and health care providers must consider moral as well as legal questions on data use, says bioethics body – Out-Law, 4/2/15

Let public have greater say over big health data – New Scientist, 3/2/15

Just because you can does not mean you should — commercial and clinical research exploitation of personal digital information – Computer Weekly, 3/2/15

Report: Public Big Data initiatives need moral framework to succeed – Fierce Biotech, 3/2/15

Abuse of health data deserves JAIL, thunders ethics body – The Register, 3/2/15

Government told to make it easier to opt out of care.data database – Independent, 3/2/15

‘Public should be consulted on NHS medical data-sharing scheme’ – Guardian, 3/2/15

Health advances using ‘big data’ at risk, ministers warned – Financial Times, 3/2/15

Concerns over use of health data – Press Association, 3/2/15

Public participation should be at the heart of big data projects – phys.org, 3/2/15

Science 2.0: Public Buy-In – And Penalties For Misuse – Essential For Big Data Success – Science, 2/2/15

ICO given expanded health data audit powers – Kable Government Computing, 2/2/15

Single opt-out “needed” for patient data – EHI, 2/2/15

January 2015

NHS data privacy plans ‘flawed’ – SC Magazine, 29/1/15

Care.data refuseniks will be DENIED CANCER SCREENING invites – The Register, 28/1/15

‘Anonymous’ NHS database could still allow patients to be identified, expert warns – Independent, 26/1/15

NHS information centre forced to write to potentially ‘millions’ of patients after care.data error – Pulse, 23/1/15

The social licence for research: why care.data ran into trouble – BMJ, 23/1/15

NHS disregards patient requests to opt out of sharing medical records – Guardian, 22/1/15

Patients miss out on bowel cancer screening after opting out of care.data – Pulse, 22/1/15

Care.data in “last chance saloon” – eHealth Insider, 22/1/15

NHS director argues big data in healthcare is a ‘moral obligation’ – care.data relaunched – diginomica, 20/1/15

NHS England rounds on critics as care.data relaunches – Pharma Times, 16/1/15

Fresh Patient Confidentiality Care.Data Concerns Arise – 24n.biz, 14/1/15

NHS relaunches controversial Care.data initiative to drive big data use in healthcare – V3, 13/1/15

NHS boss claims patient data collection is ‘morally right’ – IT Pro, 13/1/15

Care.data and big data will fill ‘dangerous gaps’ in NHS and futureproof it with genomics, argues Tim Kelsey – Computing, 13/1/15

Medical Records Scheme May Identify Patients – Sky News, 13/1/15

NHS refused to pull ‘unfit for purpose’ Care.data leaflet – The Register, 7/1/15

NHS was informed that care.data leaflets were ‘not fit for purpose’ before £1m rollout – Computing, 7/1/15

HSCIC readies secure data facility for care.data programme – Computing, 6/1/15

HSCIC secure care.data facility to open by March – Kable Government Computing, 6/1/15

HSCIC secure care.data facility to open by March – eHealth Insider, 5/1/15

2014

December 2014

Care.data review raises questions – eHealth Insider, 19/12/14

NHS watchdog raises 27 questions over Care.data before roll-out can proceed – Computer Weekly, 18/12/14

Care.data: Caldicott calls for NHS to answer areas of concern – Computing, 18/12/14

Care.data extractions on hold until NHS England satisfies GP concerns – Pulse, 18/12/14

Care.data practice pilots will not start until 2015 – Pulse, 16/12/14

Need to repeat “inadequate consultation” could further delay NHS care.data data-sharing programme – Out-Law, 15/12/14

MPs say Care.data programme should be put on hold – Computing, 12/12/14

Care.data faces more delays over concerns about patients – Computer Weekly, 12/12/14

What future is there for UK’s Care.data info sharing scheme? – The Register, 12/12/14

Launch date for care.data trial uncertain – Kable Government Computing, 12/12/14

Care.data trial date in doubt – IT Pro, 12/12/14

Controversial NHS patient data sharing pilot scheme may be delayed until 2015 – Guardian, 11/12/14

HSCIC reviews data releases to police – eHealth Insider, 9/12/14

November 2014

NHS to carry on selling patient records to insurers – Daily Telegraph, 27/11/14

Why sharing medical data could be good for your health – Daily Telegraph, 27/11/14

NHS to carry on selling patients’ medical data to insurance firms despite history of blunders over illegal use of the information – Daily Mail, 27/11/14

Care.data: a year of bungling and confusion – Stats Life (newsletter of the Royal Statistical Society), 25/11/14

NHS suffered six data breaches every day since 2011, study finds – ComputerWorld, 14/11/14

NHS data is snooped on six times every day: Staff caught looking at records of friends, family and even love rivals – Daily Mail, 14/11/14

Campaign calls for patients to choose who can access their GP record through care.data – Pulse, 10/11/14

NHS to approve health care apps for GPs to prescribe – Pulse, 4/11/14

October 2014

Fears that patient data will be disclosed under new care.data scheme – Practice Business, 24/10/14

Doctors urged to adopt default opt-out approach to care.data scheme – Out-Law, 23/10/14

Blanket care.data opt out by GPs does not breach Data Protection Act – GP Online, 22/10/14

Roundtable: Where should Care.data go from here? – Health Service Journal, 22/10/14

GP records soon wide open again: Just walk into a ‘safe haven’ – The Register, 17/10/14

Don’t trust bumbling public officials and opt out of this NHS data disaster – Sunday Express, 12/10/14

Care.data pilots to start in GP practices – ComputerWorld UK, 9 Oct 14

CCGs to host care.data test-runs revealed – The Commissioning Review, 8/10/14

Care.data goes ahead with CCG pilot – Computer Weekly 8/10/14

NHS medical records to be stored in regional data centres – Guardian, 8/10/14

Storm as NHS gives go-ahead to patient database despite concerns: Pilot scheme will involve 1.7million people unless an individual specifically ops out – Daily Mail, 8/10/14

GPs to contact patients individually to explain care.data opt-out – Pulse, 7/10/14

GPs could opt all patients out of care.data opt under data protection laws, information office says – Pulse, 6/10/14

GPs practices can opt out of care.data – eHealth Insider, 3/10/14

September 2014

Kelsey steps up NHS data drive – Kable Government Computing, 17/9/14

Care.data pilots to be chosen ‘shortly’ – eHealth Insider, 10/9/14

August 2014

Confidentiality costs – Stats Life (newsletter of the Royal Statistical Society), 27/8/14

NHS England looks at expanding care.data extractions to include ‘sensitive’ patient information – Pulse, 19/8/14

Police should have greater access to medical records, says chief constable – Pulse, 11/8/14

Key care.data letters ‘not sent’eHealth Insider,  5/8/14

Make care.data opt in or we will opt patients out, say GPs – Pulse, 5/8/14

GPs’ care.data responsibilities amount to ‘good customer service’, says information commissioner – Pulse, 5/8/14

July 2014

Indefinite delay for care.data after patient fiasco – Pharma Times, 29/7/14

GPs most trusted by public to protect their data – Pulse, 23/7/14

care.data is back, with pilot in 500 GP practices – Civil Service World, 18/7/14

Home Office accessing NHS records to help track down illegal immigrants – Guardian, 14/7/14

HSCIC warns of HES confidentiality – eHealth Insider, 4/7/14

Patient data oversight committee appoints new chair – IT Pro Portal, 4/7/14

GPs to send patient letters explaining care.data ‘opt-out’ – Pulse, 3/7/14

UK would be ‘losing out’ if citizens don’t allow NHS to share information for care.data – Computing, 3/7/14

Insurance company refuses NHS request to delete patient data – Health Service Journal, 2/7/14

Sharing patient data must be embraced despite “understandable caution” – Kable Government Computing, 2/7/14

Caldicott to oversee care.data pilot – eHealth Insider, 2/7/14

Care.data will remain opt-out model, says NHS director Tim Kelsey – Computer Weekly, 1/7/14

June 2014

‘Criminals could breach new NHS database’ – Sunday Post, 29/6/14

Care.Data pilot to be limited to just 100 GP practices – PMLiVE, 27/6/14

NHS data governance in critical condition – Computing, 27/6/14

Plans unveiled for new data sharing regime within the NHS – Out-law, 27/6/14

BMA votes for Care.data to be explicitly opt-in – Computer Weekly, 25/6/14

Over half the public still unaware of care.data – Pulse, 25/6/14

Parts of care.data should be ‘opt-in’ only, says NHS England director – Pulse, 20/6/14

Tesco Clubcard founder worried about Care.data – Computer Weekly, 18/6/14

Government shared patient data with no record of recipient – Pulse, 17/6/14

HSCIC tightens controls over patient data following data lapse – Computer Weekly, 17/6/14

NHS guilty of ‘unacceptable’ lapses in sale of patient information to private sector – Daily Telegraph, 17/6/14

NHS patient data audit uncovers ‘significant lapses’ in confidentiality – Guardian, 17/6/14

NHS England defends Care.data following ‘enormous outcry’ – Health Service Journal, 9/6/14

Ignorance of care quality is ‘true scandal’ facing NHS, warns health chief – Daily Telegraph, 6/6/14

NHS must think like Google to make data project work – The Conversation, 2/6/14

Health information agency chokes data flow – Health Service Journal, 2/6/14

May 2014

Mark Walport: Government must make the case for you to share – Wired, 29/5/14

Care.data should be opt-in, say GPs – GP Online, 27/5/14

GPs vote in favour of an opt-in system for care.data – Pulse, 23/5/14

Half of UK citizens say they do not trust NHS with personal data – Computing, 20/5/14

Care Data: the Pros  &  Care Data: the Cons – Two separate articles at “SCL – The IT Law Community”, 15/5/14

Practice opts all patients out of care.data despite delay to roll-out – Pulse, 12/5/14

NHS patient data storm: Govt lords SLAP DOWN privacy protections – The Register, 8/5/14

Trust in the time of markets: protecting patient information – The Lancet (free registration required), 3/5/14

Three crucial safeguards for medical records proposed by leading voices on care.data – Open Democracy, 2/5/14

Healthy scepticism – SC Magazine, 1/5/14

April 2014

Care.data doesn’t care enough about consent – BMJ, 22/4/14England’s Care.data Fiasco: Open Government Data Done Wrong – Tech President, 21/4/14

NHS Care.data information scheme ‘mishandled’ – BBC, 18/4/14 (plus recorded interview)

Open data: slow down – Guardian, 18/4/14

Pharma access to UK patient records ‘still up for debate’ – Pharma Phorum, 11/4/14

ID from medical data could spark ‘crisis’ – Times Higher Education, 10/4/14

Identifiable patient data lost on four occasions since 2009 by Government information centre – Pulse, 9/4/14

HSCIC admits to five HES data breaches – eHealth Insider, 9/4/14

NHS blunders put millions of records at risk – Daily Telegraph, 8/4/14

NHS reveals it has only spent £1.3m on care.data to date – Computing, 7/4/14

Drugs companies buy NHS patient data, register reveals – Daily Telegraph, 3/4/14

Patient records handed out to 56 private sector organisations data controller reveals – Pulse, 3/4/14

How to fix NHS care.data – Wired, 2/4/14

Care.data advisory group meets – eHealth Insider, 1/4/14

March 2014

NHS Care.data PR Fiasco Continues as Google Pulls Out of Secret Deal – Info Security, 27/3/14

Joe’s view of care.data – eHealth Insider, 27/3/14

Google pulls out of secret deal to show data on NHS hospitals – The Times, 26/3/14

FoI reveals cynical logic that compromises NHS data privacy – The Conversation, 25/3/14

Care.data – where next? – Computer Weekly, 24/3/14

Care.data advisory group announced – eHealth Insider, 21/3/14

Care.data confidentiality concerns cannot be ignored, say doctors – BMA, 21/3/14

Care.data: the patient’s view – Health Service Journal, 21/3/14

NHS data-sharing ‘a no-brainer’, says health chief – Guardian, 21/3/14

GPs should use public ‘trust’ to sell benefits of care.data, says Hunt – Pulse, 19/3/14

Online tool could be used to identify public figures’ medical care, say critics – Guardian, 18/3/14

The future of care.data hangs in the balance – Open Democracy, 17/3/14

NHS sells a billion patient records – Sunday Times, 16/3/14

Don’t upload health care data to Google cloud, UK groups say – PC World, 14/3/14

MPs agree to data-sharing safeguards – BBC, 11/3/14

Privacy campaigners team up with leading public health professor to fix Hunt’s ‘complete nonsense’ on care.data – Open Democracy, 11/3/14

Review to probe sale of NHS medical data – Daily Telegraph, 7/3/14

Three things to save when the Care.data ship goes down – Wired, 6/3/14

Senior NHS England staff criticised for tweeting factually incorrect care.data information – Pulse, 6/3/14

Time for some truth about who is feeding off our NHS data – The Conversation, 5/3/14

Careless.data – Nature editorial, 4/3/14

Case for care.data poorly publicised – On Medica, 4/3/14

Triple-headed NHS privacy scare after hospital data reach marketers, Google – The Register, 4/3/14

NHS hospital records used by private marketing firms – Daily Telegraph, 4/3/14

Committee to debate sharing medical data – Sheffield Star, 2/3/14

Care.data is in chaos. It breaks my heart – Guardian, 1/3/14

Cashing in on patient records to be banned: But you’ll still have to opt out to keep private details off database – Daily Mail, 1/3/14

NHS data row shows rising public unease, information chief warns – Guardian, 1/3/14

February 2014

Patients need to have control over their own information if care.data is to work – Guardian, 28/2/14

NHS data blunders mean you can’t trust Care.data – Wired, 26/2/14

NHS data: take more care – Guardian editorial, 26/2/14

Three in four GPs believe care.data should be ‘opt in’ – Pulse, 26/2/14

Care.data should be opt-in – Jarman – eHealth Insider 25/2/14

Health bosses ‘undermine trust’ in patient database, say MPs – Health Service Journal, 25/2/14

Medical records rules broken, NHS admits – BBC, 24/2/14

Firm linked to drug makers sought pact on access to patient records database – Guardian, 24/2/14

Why should you care about care.data? – Daily Mirror 24/2/14

47 million NHS patient records sold to accountants – Daily Mirror, 24/2/14

Hospital records of all NHS patients sold to insurers – Daily Telegraph, 23/2/14

Legal straits forced NHS delay on care.data – ComputerWeekly, 21/2/14

The NHS plan to share our medical data can save lives – but must be done right – Guardian, 21/2/14

Opt-out of new NHS data scheme urges former Shropshire hospital boss – Shropshire Star, 20/2/14

North East doctors shun controversial plans to share medical records – The Journal, 20/2/14

Care.data: How did it go so wrong? – BBC, 19/2/14

Rebel GP told contract notice over care.data opt-outs was a ‘misunderstanding’ – Pulse, 19/2/14

Clare Gerada of NHS England on Newsnight – BBC Two, 18/2/14

Medical records share plan delayed – Evening Standard, 18/2/14

Legal action begins day before NHS patient data share is delayed – Leigh Day, 18/2/14

NHS Records Database Postponed Amid Concern – Sky News, 18/2/14

Victory for privacy as NHS Database delayed – Independent, 18/2/14

NHS in England delays sharing of medical records – Guardian, 18/2/14

Giant NHS database rollout delayed – BBC News, 18/2/14

NHS admits new medical records database could pose privacy risk – Telegraph, 17/2/14

Two-thirds oppose plans for new NHS database that will see confidential medical records sold to private firms – Daily Mail, 15/2/14

2,000 NHS patients’ records are lost every day with more than two million serious data breaches logged since the start of 2011 – Daily Mail, 15/2/14

BBC local radio interview featuring Dr Neil Bhatia and Roy Lilley (11:50 onwards) – BBC Radio Sussex, 14/2/14

Adults ‘unaware of NHS data plans’ – BBC News, 14/2/14

BBC Radio 4 PM show item on care.data – BBC Radio 4, 14/2/14

George Mudie: Questions of confidentiality over NHS database – Yorkshire Post, 13/2/14

John Appleby: Care.data: your bits in their hands – BMJ Group blogs, 13/2/14

Martin Caldwell on why he is concerned about care.data – BMJ Group blogs, 13/2/14

GPs warn of crisis in public confidence over NHS database – Daily Mail, 13/2/14

House of Commons Written Answers – Medical Records: Data Protection – Hansard, 12/2/14

GP leaders demand action over care.data – PharmaTimes, 12/2/14

NHS database faces ‘crisis of public confidence’, GP body warns – Guardian, 12/2/14

‘Crisis of confidence’ in NHS database, warn GPs – Telegraph, 12/2/14

RCGP voices concerns about care.data – RCGP press release, 12/2/14

MPs voice concerns over care.data in Parliamentary debate – Computing News, 11/2/14

ICO blog: NHS patient information: the Information Centre and the DPA – Information Commissioner’s Office blog, 11/2/14

Revealed: Big Pharma’s hidden links to NHS policy, with senior MPs saying medical industry uses ‘wealth to influence government’ – Independent, 11/2/14

NHS bosses accused of ‘climate of fear’ over care.data – Telegraph, 10/2/14

Public face of Health and Social Care Information Centre to depart – Guardian, 10/2/14

When is an opt-out not an opt-out? When it’s a care.data opt-out – Computing News, 10/2/14

Ignore NHS snoops | Nick Ferrari – Sunday Express, 9/2/14

‘Big Brother’ database will grab children’s health records but parents are being kept in the dark – Mail on Sunday, 9/2/14

Data-sharing: “some GPs are opting-out entire practices” – PharmaTimes, 8/2/14

Insurers ‘could use new NHS database to track you down within two hours’ – Daily Mail, 8/2/14

GP vows to take battle with the NHS through the courts – Oxford Mail, 8/2/14

Care.data will allow police access to patient records without informing GPs – Pulse Today, 7/2/14

A simple guide to care.data – Wired UK, 7/2/14

Re-identifying care.data illegal – E-Health Insider, 7/2/14

Download a care.data opt-out form for your patients – Pulse Today, 7/2/14 [Copy of trifold]

Medical info in CARE.DATA not ‘properly anonymised’ – ITV News, 7/2/14

DAILY MAIL COMMENT: Big Brother’s grab for your health secrets – Daily Mail, 7/2/14

NHS bosses are bullying GPs into sharing their patients’ data, say MPs: Scheme described as a ‘frankly disgraceful’ treatment of patient confidentiality – Daily Mail, 7/2/14

The Debate Over NHS Pseudonymized Patient Data Grows – Infosecurity magazine, 6/2/14

NHS will be dependent on EHRs – Hunt – E-Health Insider, 6/2/14 [“Hunt said that when care.data information is linked with the sequencing of human genomes…”]

Police will have ‘backdoor’ access to health records despite opt-out, says MP – Guardian, 6/2/14

Notice on Dr Gordon Gancz’ practice website – King Edward Street Surgery

I won’t give in to the NHS Thought Police who want to sell your private medical records: GP threatened by health chiefs hits back – Daily Mail, 6/2/14

Pseudonymised health data will not be able to be traced back to individuals under care data scheme, says official – OutLaw, 5/2/14

GPs revolt on patient records: Growing anger at NHS plan to harvest private data – Daily Mail, 5/2/14

NHS ‘bullies’ threaten to axe GP for keeping his patients’ records private – Daily Mail, 5/2/14

Care.data and the murky US partnership that puts your health data at risk – Wired UK, 4/2/14

NHS admits it should have been clearer over medical records-sharing scheme – Guardian, 4/2/14

NHS England ‘not clear enough’ to patients about care.data opt-out – British Computer Society, 4/2/14

House of Commons Written Answers – Medical Records: Databases – Hansard (via TheyWorkForYou), 4/2/14

Giant patient records database ‘should be delayed’ – BBC News, 4/2/14

NHS admits it should have been clearer over medical records-sharing scheme – Guardian, 4/2/14

‘Maybe we haven’t been clear enough about med records opt-out’, admits NHS data boss – The Register, 4/2/14

[Archive: unlawful access by authorised user] No action against doc who accessed ECS – E-Health Insider, 15/1/10

[Archive: Harm & distress] New leaked data fiasco – Channel 4 News, 10/1/08

[Archive: Harm & distress] Whistleblower who was excluded from work for five years wins apology – BMJ, 12/1/08

[Archive: Harm & distress] The woman falsely labelled alcoholic by the NHS – Guardian, 2/11/06

Untrue claims by NHS IT chief – Light Blue Touchpaper, 4/2/14

BBC Radio 4 Today programme – NHS ‘very good at preserving privacy’ – BBC Radio 4, 4/2/14

Giving away your data: from Galton and Google to care.data – Guardian, 3/2/14

What price our NHS medical records? – Observer Letters, 2/2/14

January 2014

GP survey reveals extent of care.data ignorance among patients and staff – Pulse Today, 31/1/14

Give the gift of life by donating your medical records – New Scientist, 31/1/14

Opting out of care.data is not the answer – openDemocracy, 31/1/14

care.data interviews on BBC Radio Cambridgeshire – BBC Radio Cambridgeshire, 29/1/14

Patients may lose trust in NHS if care.data scheme goes ahead, admits NHS England risk analysis – Pulse Today, 28/1/14

‘Going Underground’ interview (care.data item begins at 00:16:00) – Russia Today TV, 27/1/14

Why your health secrets may no longer be safe with your GP – Observer, 26/1/14

Four in 10 GPs to opt out of NHS database – Telegraph, 24/1/14

40 per cent of GPs plan to opt out of the NHS big data sweep, due to a lack of confidence in the project – Independent, 24/1/14

Over 40% of GPs intend to opt themselves out of care.data scheme – Pulse, 24/1/14

Sleepwalking into an information grab by private health – openDemocracy, 23/1/14

MP tables motion to halt care.data rollout as 2,400 patients call helpline– Pulse, 22/1/14

NHS already handing out private data on thousands of patients: Details given to universities, hospitals and watchdogs without checking for consent – Daily Mail, 21/1/14

Dont mislead us about our NHS medical records – Telegraph, 20/1/14

EU proposals could outlaw giant NHS database – Telegraph, 20/1/14

Why you should be angry about changes to NHS patient data policy – Guardian, 20/1/14

Patients will be identifiable when firms are given access to confidential NHS data, experts warn – Independent, 20/1/14

NHS patient data to be made available for sale to drug and insurance companies – Guardian, 19/1/14

Independent experts overseeing care.data have approved 31 releases of identifiable patient data since April – Pulse, 17/1/14

Experts overseeing care.data have been approving releases of identifiable patient data – ComputerWorld UK, 17/1/14

Care.data business case needs approval – EHI, 17/1/14

Should GPs fear sharing NHS data? – GP, 17/1/14

Power to the people – Nature, 15/1/14

Making a choice on the data sharing of medical records – Government Computing, 13/1/14

Patients urge caution over GP data sharing – GP, 13/1/14

Health records of every NHS patient to be shared in vast database – Telegraph, 10/1/14

GPs held responsible for patient complaints over NHS data-sharing project, says ICO – Pulse, 10/1/14

Concerns Heightened About Opt-Out Central Database For UK Patients Health Data – Infosecurity, 9/1/14

Care.data campaign leaflet slammed – EHI, 7/1/14

NHS carelessly slings out care.data plans to 26.5 million Brits – The Register, 6/1/14

NHS Englands wholly inadequate leaflet drop – Big Brother Watch, 6/1/14

Your life in their hands: is the care.data NHS database a healthy step or a gross invasion of patient privacy? – Independent, 6/1/14

GP rebellion over plan to share millions of patients data – Mail on Sunday, 5/1/14

GPs urged to proactively support NHS data-sharing publicity campaign starting next week – Pulse, 2/1/14

2013

December 2013

By the way… Your medical notes aren’t private now – Daily Mail, 10/12/13

Biggest risk to care.data scheme is potential loss of GP confidence in benefits of scheme – Pulse, 3/12/13

GP extract to care.data starts in March – EHI, 2/12/13

November 2013

Patient confidentiality in a time of care.data – BMJ, 27/11/13

Fears grow over open access to patient records – Observer, 24/11/13

What does the NHSs new IT plan really want to extract from us? – The Register, 21/11/13

Second GP decides to opt all patients out of records extraction as care.data rebellion grows – Pulse, 19/11/13

Why I’m opting patients out of the care.data scheme – Pulse, 12/11/13

GP takes unlawful decision to opt patients out of care.data programme – Pulse, 12/11/13

College GP challenges government proposals – The Oxford Student, 7/11/13

GP: Why does the NHS need to obtain so much data from patients? – Computing, 7/11/13

care.data: the creep begins – medConfidential, 3/11/13

October 2013

Big data = big deal – Pulse, 23/10/13

SCR opt-out does not apply to care.data – EHI, 22/10/13

Care.data campaign – not off to a flyer – Commissioning GP, 21/10/13

GPs should use repeat prescriptions to inform patients about care.data, says new guidance – Pulse, 21/10/13

NHS climbdown over big brother database – Daily Mail, 19/10/13

Anger over medical records sold to private firms – ThisIsDerbyshire, 17/10/13

Big data: unthinking, ignorant and callous – HSJ, 17/10/13

NHS preps spammy mailshots advertising BIGGEST medical data grab in HISTORY – The Register, 16/10/13

£1m national leaflet drop on care.data – EHI, 16/10/13

NHS England bows to confidentiality concerns and launches £2m national publicity campaign on care.data – Pulse, 16/10/13

Care.data project to collate all NHS patients records – Independent, 16/10/13

UK push to open up patients data – Nature, 15/10/13

Care.data: the latest threat to patient privacy? – Computing, 14/10/13

We’ve not had the time to inform patients about this – Oxford Mail, 9/10/13

Essex GP demands more time to warn patients about data extraction – GP, 8/10/13

Medical records may be shared around – Biggleswade Chronicle, 4/10/13

Care.data extractions on hold – EHI, 4/10/13

Eight weeks to inform patients their data is going to be harvested, GPs warned – Pulse, 4/10/13

Campaigners claim GPs could face £500k fines over data protection – GP, 3/10/13

2020health calls for care.data to be postponed and replaced by an opt-in system – 2020Health, 3/10/13

NHS data extraction programme poses enormous threat to privacy – Pulse, 1/10/13

Wirral Euro MP warns of NHS data grab – Wirral Globe, 1/10/13

September 2013

GPs unable to object to patient data being shared, warns GPC – Pulse, 26/9/13

Care.data publicity not adequate – EHI, 24/9/13

GPs threaten to boycott Big Brother NHS database which would force them to send confidential patient records to private firms – Daily Mail, 21/9/13

GP leaders consider boycott of NHS Englands data extraction programme – Pulse, 19/9/13

Hunt’s paperless, data-pimping NHS plan gets another £240m – The Register, 5/9/13

Hunt announces new push to create database of NHS patients records – Guardian, 4/9/13

August 2013

Kelsey Uncut: Tweet’n’delete – HSJ, 29/8/13

Anger in East Lancashire over plans to sell patient data – Lancashire Telegraph, 23/8/13

Your confidential medical records for sale… at just £1 – Daily Mail, 18/8/13

Jeremy Hunt plans sale of confidential patient medical records to private firms – Telegraph, 18/8/13

NHS managers rule out publicity campaign for controversial data extract programme – Pulse, 15/8/13

GP group does care.data campaign – EHI, 2/8/13

May 2013

NHS England to begin extracting data from GP records – Pulse, 29/5/13

Database of patient information takes first steps – Telegraph, 29/5/13

£140 could buy private firms data on NHS patients – Guardian, 17/5/13

April 2013

U-turn over NHS database opt-out: Victory for privacy campaign as Hunt backs down – Daily Mail, 26/4/13

Hunt on NHS data sharing: Obviously we HAVE TO let people opt out – The Register, 26/4/13

February 2013

GPC calls for publicity campaign over ‘fundamental change’ in use of patient data – Pulse, 20/2/2013

NHS data bank plan condemned over privacy fears – Times, 2/2/13

Privacy fears as GPs compelled to share patient information – Evening Standard, 2/2/13

NHS patient confidentiality at risk from central database records – Guardian, 2/2/13

Big brother to log your drinking habits and waist size as GPs are forced to hand over confidential records – Daily Mail, 1/2/13

2012

Millions of patients data to sold off for research after Cameron announces radical plan to change NHS constitution – Daily Mail, 2/8/12

2011

Concerns over plan to boost pharma by releasing NHS data – The Register, 12/12/11