conference at QMUL, Saturday 5th April 2014

*UPDATE* Read the Conference statement, published 8th April 2014

Many thanks to Richard Horton and Allyson Pollock for organising the conference, and to everyone who made such useful contributions on the day.

Conference co-organised by Richard Horton, Editor of The Lancet and Prof Allyson Pollock, QMUL

Date: Saturday 5th April 2014, 09:30 – 12:45

Venue: Clark-Kennedy Lecture Theater, QMUL Whitechapel Campus, London E1 2AD (Map)


Programme for meeting – Saturday 5th April 2014
ChairpersonRichard Horton, Editor of The Lancet

Time Action
9.30am Coffee
10.00am What are the governance concerns : brief review of HSCIC, CAG and GP data controllers and CSUs – Phil Booth, medConfidential (slides); Ron Singer, GP & MPU
10.10am Concerns about what is happening to public health data: cuts to ONS data collection – Prof Alison McFarlane
10.20am The Faculty of Public Health’s position – Dr John Middleton
10.30am How robust are the current legal protections: DPA and exceptions to patient confidentiality – Peter Roderick
10.40am The Scottish position regarding data sharing – Dr Janet Murray (ISD Scotland)
10.50am                                Discussion and contributions from the floor
11.20am The government’s proposed amendment – Lord David Owen
11.30am Proposals for new legislation – Peter Roderick
11.40 – 12.45pm Proposal for Action: discussion led by Lord David Owen and Peter Roderick