A selection of press and online articles, radio and TV items about the privacy of NHS records.

2024

November

UK government to create surveillance system for future pandemics – Digital Health, 6 November

Concerns raised that NHS digital plans could exclude older adults – Digital Health, 5 November

October

Concerns raised over access to UK Biobank data after ‘race scientists’ claims – The Guardian, 25 October

Yet another UK government seeks to reform GDPR – The Register, 24 October

NHS staff use WhatsApp ‘constantly’ to share private patient data – FT, 24 October

Privacy fears over NHS staff using WhatsApp to share patient data – The Telegraph, 24 October

Before moving from “analogue to digital,” the NHS has to fix its privacy flaws – TechRadar, 24 October

Ministers pledge unified patient record in NHS App as part of 10-year journey from ‘analogue to digital’ – Public Technology, 22 October

Patients to get full access to record on NHS App – BBC News, 21 October

Labour’s NHS tech revolution ‘risks isolating elderly and vulnerable’ – Independent, 21 October

Starmer insists NHS must make better use of tech amid data protection concerns – Independent, 21 October

NHS data sharing will streamline services, says health minister – Independent, 21 October

NHS care can be a ‘death sentence’ for some patients – Wes Streeting – Independent, 21 October

UK Biobank refutes claim that ‘race science’ group accessed data – Digital Health 18 October

US startup charging couples to ‘screen embryos for IQ’ – The Guardian, 18 October

‘Race science’ group say they accessed sensitive UK health data – The Guardian, 17 October

Tell us: have you donated your health information to UK Biobank? – The Guardian, 17 October

Revealed: International ‘race science’ network secretly funded by US tech boss – The Guardian, 16 October

NHS England warned about plans to extend Covid-era rules for patient data access – The Register, 16 October

Single patient record bridging GP practices and hospitals to form key part of 10-year NHS plan – GP Online, 4 October

September

NHS Tayside falsely claimed it deleted Dundee HIV patient’s historic medical records – The Courier, 30 September

NHSE chief: Federated data platform will ‘not be spectacular’ – HSJ, 26 September

How OpenSAFELY provides much-needed transparency in big data medical research – Clinical Trials Arena, 24 September

More than half of acute trusts signed up to the NHS FDP – Digital Health, 23 September

NHS drops another billion on tech in the hope of finally going digital – The Register, 23 September

Concerns raised over flagship Pharmacy First scheme – Channel 4, 19 September

NHS cannot embrace AI until its basic IT systems are up to scratch – The Guardian, 15 September

Patients may be able to opt out of sharing their data with the FDP – Digital Health, 10 September

Key aspects of Palantir’s Federated Data Platform lack legal basis, lawyers tell NHS England – The Register, 5 September

Patient confidentiality breach: GP surgery sent private emails to the wrong patient – The Express, 1 September

August

NHS England excludes GPs from cheaper medicines deal due to ‘confidentiality concerns’ – Pulse, 28 August

Prior UK government planned £485M four-year budget for Palantir-based healthcare system – The Register, 21 August

The NHS selling off our data management to Palantir is an attack on us and democracy – The Canary, 20 August

Blair Institute calls for crash programme of digital health records – Digital Health, 20 August

Tony Blair’s NHS dream? Fewer GPs, more chatbots – Politico, 19 August

AI data-sharing deal ‘breaks national guidance’ – HSJ, 16 August

Privacy concerns raised over trust’s AI data-sharing deal – Digital Health, 16 August

Superintendent suspended after builders dump patient data in recycling centre – Pharmacy Magazine, 15 August

Hackers behind cyber attack ordered by judge to return stolen NHS patient data – Evening Standard, 15 August

NHSE U-turn mandates trust use of the FDP – HSJ, 1 August

July

NHS health board hackers unlikely to be convicted – police – BBC News, 31 July

NHS England says Truss must start using FDP within two years – Digital Health, 31 July

Adoption of FDP ‘progressing at pace’, says NHS England – Digital Health, 31 July

Users of NHS Federated Data Platform get support portal – UK Authority, 30 July

NHS Patient Data Privacy Under Scrutiny – MedScape, 29 July

Labour ‘won’t be squeamish about making money from NHS data’ – The Times, 26 July

NHS hack prompts tougher UK cyber security rules for private providers – FT, 21 July

Global IT outage disrupting NHS ’caused by antivirus software’ – Digital Health, 19 July

UK Plans New Cybersecurity Laws After NHS Hospital Hack – Bloomberg, 17 July

Labour government begins to dish out digital responsibilities – Computer Weekly, 16 July

Labour appointments include DWP minister for transformation and leader for NHS data platform – Public Technology, 15 July

NHS data chief was ‘guest of honour’ at Palantir lobbyist’s dinner – FT, 11 July

Row erupts over data sharing function in UK doctor software – The Register, 4 July

June

NHS confirms patient data stolen in cyber attack – BBC News, 24 June

Wes Streeting slams ‘glacial’ pace of FDP adoption – Digital Health, 19 June

NHS worker secretly read ex-colleague’s medical records – Stoke Sentinel, 16 June

Campaigners protest against Palantir at NHS Confed Expo – Digital Health, 13 June

Student’s flimsy bin bags blamed for latest NHS data breach – The Register, 13 June

Ministers urged to release details of cybersecurity audit at hacked NHS health board – FutureScot, 5 June

Were staff who tried to pry on Kate caught in a trap – MSN, 2 June

Were private hospital staff who tried to pry on Kate Middleton’s files caught in a ‘decoy’ trap sting by health chiefs? – Daily Mail, 1st June

May

Northamptonshire hospitals are first to transition to local instance of FDP
– Digital Health, 21 May

The UK public is not confident about NHS cybersecurity at all – techRadar, 14 May

UK public voice fear over security in NHS data systems – The Register, 13 May

April

Persistent sensitive information breaches failing people living with HIV – Charity Today, 30 April

Persistent sensitive information breaches failing people living with HIV – ICO, 30 April

KPMG bags £8.5M NHS gig as cheerleader for Federated Data Platform rollout – The Register, 16 April

NHS patients in Dumfries and Galloway urged to look out for cyber extortion after data breach – Public Technology, 12 April

Health workers blockade NHSE over Palantir contract – Pulse Today, 4 April

March

UK health department republishes £330M Palantir contract with fewer █████ – The Register, 25 March

Nurses cautioned on patient confidentiality amid royal data breach – Nursing Times, 21 March

NHSE misses deadline to upload less redacted version of Palantir contract – Digital Health, 20 March

Three hospital staff under investigation over Kate’s medical records – The Times, 20 March

Wes Streeting: Under Labour, technology could transform the NHS – The Times, 19 March

Health board ‘running as normal’ after cyber attack – BBC News, 19 March

NHS England removes web page hinting at plans for ‘central database’ of GP patient records – Pulse Today, 14 March

Digitise the dark age computers to digitise the NHS – The Independent, 10 March

February

Good Law Project sues NHSE over heavily redacted Palantir FDP contract – Digital Health, 20 February

NHS websites are handing out YOUR health secrets to the likes of Google and Facebook without your consent – Daily Mail, 20 February

NHS England challenged over redacted Palantir contract – Computing, 20 February

Legal campaigners challenge UK.gov decision to redact NHS-Palantir contract – The Register, 20 February

What’s so secret about data giant’s NHS deal with Palantir? – Tortoise, 19 February

Campaign group takes legal step against NHS Federated Data Platform contract – UK Authority, 16 February

Health Secretary: Federated Data Platform could include GP records – Digital Health, 14 February

What are medical passports and why are they so controversial? – Evening Standard, 8 February

GP data could be included on controversial new federated platform, says health secretary – Pulse, 6 February

Drug checking services must be confidential to succeed, say academics – The National, 1 February

January

No ‘lawful basis’ for FDP, lawyer warns NHSE – HSJ, 31 January

Turn of the century UK pols say it’s time to turn NHS health data into a ‘competitive asset’ – The Stack, 29 January

NHS data platform: Questions raised over Palantir ‘influencer’ campaign – Public Technology, 9 January

NHSE to investigate Palantir for possible breach of FDP contract – Digital Health, 8 January

NHSE publishes heavily redacted Palantir FDP contract – Digital Health, 8 January

Expert sounds alarm bells over upcoming NHS data platform – The Register, 5th Jan

NHS Probes Whether Palantir Influencer Campaign Breached Contract Terms – Bloomberg, 5th January

NHS England under fire for Palantir contract transparency – Computing, 3 January

2023

December

Trusts dispute NHS England’s ‘benefits’ claim over FDP pilot – HSJ, 22 December

Rewired 2024: ICSs will want to use the FDP ‘if the original vision holds up’ – Digital Health, 21 December

Palantir platform ‘will be more secure than anything currently used in NHS’, minister says – Public Technology, 21 December

The NHS needs to get its house in order before handing over our health records – Politics.co.uk, 15 December

NHS England plans national vaccination data record – UK Authority, 15 December 2023

Dying people are being failed by the NHS’s approach to sharing information – HSJ, 14 December

Yet another UK public sector data blab, this time info of pregnant women, cancer patients – The Register, 7 December

Data breach by Addenbrooke’s Hospital reveals patient information – BBC, 6 December

The mythbuster: The real problems with the FDP are not its cost or threat to data security – HSJ, 4 December

You may balk at giving your health data to Palantir but it could save your life – The Guardian, 2 December

Legal challenge launched against NHS-Palantir data deal – Computing, 1 December

Health crusaders prep legal challenge over NHS mega contract with Palantir – The Register, 1 December

New technology can revolutionise the NHS, if only staff will let it – 1 December, The Times

Improving patient experience needn’t cost the earth – HSJ, 1 December

Google and ICB in talks for first-of-kind patient data scheme – HSJ, 1 December

November 2023

UK Biobank and the masses of medical data that became key to genetic research – The Guardian, 30 November

Genetic data on 500,000 volunteers in UK to be released for scientific study – The Guardian, 30 November

Renters issued warning over landlord bank account rules which ‘should be scrapped’ – Birmingham Live, 30 November

A controversial new federated data platform for the NHS in England – BMJ, 29 November

FAKE NURSE A nurse imposter ‘helped’ hospital staff with a patient before making off with personal information about 14 others – The Scottish Sun, 28 November

The Guardian view on the NHS and Palantir: the case for this data deal looks weak – The Guardian, 28 November

Somerset NHS FT contacts patients about data breach – Digital Health, 27 November

Tech firm Palantir rejects concerns over role in NHS data platform plans – Press Association, 25 November

NHS must protect and build public’s trust in its ability to safely handle health data, report argues – Health Foundation, 24 November

MPs to press new Health Secretary on NHS data platform plans – Yahoo! news, 22 November

Palantir gets £480m contract to run NHS data platform – BMJ, 21 November

US tech group Palantir wins lucrative NHS data contract – FT, 21 November

NHS England confirms Palantir contract for Federated Data Platform – UK Authority, 21 November

NHS England awards £330m Federated Data Platform contract to Palantir – Digital Health, 21 November

New NHS software to improve care for millions of patients – NHS England, 21 November

Revealed: obesity jab maker discussed targeting benefit claimants with UK government – The Guardian, 18 November

NHS expands use of secure COVID-19 research platform to help find new treatments for major killer conditions – NHS England, 17 November

Community pharmacists to gain greater access to GP record from January – Pulse, 16 November

Anger as Fife GP patients’ private details leaked in ‘deeply concerning’ data breach – The Courier, 15 November

BMA has ‘no faith’ in NHS federated data platform plans – Pulse, 15 November

Frontline digitisation funds at risk to cover industrial action costs – Digital Health, 15 November

Pause plans for data sharing contract to ensure trust and patient consent, plead doctors’ leaders – BMJ, 14 November

Private UK health data donated for medical research shared with insurance companies – The Guardian, 12 November

The women being prosecuted in Great Britain for abortions: ‘Her confidentiality was completely destroyed’ – The Guardian, 10 November

Patients may shun new NHS data store over privacy fears, doctors warn – The Guardian, 10 November

Palantir to be named as winner of Federated Data Platform – Digital Health, 9 November

‘Bluntly wrong’ to hand NHS data to Palantir, says former Cabinet minister – Pulse, 8 November

AI and data: Consent to use of data ‘a sticking plaster for broken systems’ – Digital Health, 1 November

October 2023

NHS England has not yet proven its case on FDP – Digital Health, 30 October

Palantir CEO acknowledges FDP could aid NHS data being sold in future – Digital Health, 30 October

NHS to seek public’s opinion on health data usage – Digital Health, 29 September

Ken Griffin and Eric Schmidt invest $10mn each in UK genetics database – FT, 29 October

NHS sends confidential jab letters to wrong addresses — and even to dead people – The Sun, 28 October

What does Palantir want with NHS data? – Unherd, 27 October

NHS: Concerns mount over ‘prospective medical records’ access from 31st October – Computing, 27 October 2023

ICB chiefs urged to join campaign to build confidence in £480m data platform – HSJ, 26 October

What you need to know about Palantir, the US firm in line for a £480m NHS deal – OpenDemocracy, 23 October

Half a billion pound NHS data platform award still stuck in the pipes – The Register, 20 October

Britain’s life sciences sector needs a shot in the arm – FT, 18 October

Half a million of us want to donate our data to British science, but it’s languishing unused because of privacy fears – The Guardian, 17 October

ImPatient: It’s all about power – and we don’t have any – HSJ, 16 October

Medical leaders endorse federated data platform as NHS England kicks off public engagement campaign – National Health Executive, 16 October

Everything you need to know about NHS England’s biggest ever IT contract – The Guardian, 12 October

NHS Trust Medical Directors asked to publicly back FDP – Digital Health, 12 October

Privacy groups focus on national data opt-out as FDP tender concludes – Digital Health, 5 October

Firm Chaired By ‘Pro-Privatisation’ Right-Wing US Billionaire in Line to Oversee NHS Health Data – Byline Times, 5 October

Palantir Closes In on Controversial UK Health Data Contract – Bloomberg, 3 October

BMA ‘holding back medical research’ by refusing to endorse UK Biobank appeal for data – The Times, 2 October

Mapping and evaluating national data flows: transparency, privacy, and guiding infrastructural transformation – The Lancet, October 2023

September 2023

UK Biobank writes to all GP practices requesting they share patient data – Pulse, 29 September

Contract for England’s controversial health data platform delayed – The Register, 29th September

How Peter Thiel’s Palantir Pushed Toward the Heart of U.K. Health Care – New York Times, 29 September

Controversial US tech giant Palantir ‘set to win £480million NHS contract to manage your patient data’ – Daily Mail, 29 September

US spy tech firm ‘in pole position’ for NHS patient data contract – The Times, 29 September

£480m data system ‘critical for NHS’s future’, says new NHSE transformation director – HSJ, 26 September

Former NHS tech chief joins firm bidding for £480m NHS data contract – HSJ, 22 September

Palantir’s Reputation Stalks Its Bid for the UK’s National Health Data – Wired, 21 September

The Fall of Babylon Is a Warning for AI Unicorns – Wired, 19 September

NHSE project will stop patients sharing data, government advisers fear – HSJ, 19 September

Is the Federated Data Platform too expensive to cancel? – Digital Health, 19 September

Trust is the key to healthcare data sharing – The Guardian, 17 September

‘Our health data is about to flow more freely, like it or not’: big tech’s plans for the NHS – The Guardian, 14 September

Babylon Health’s CEO ‘Should Spend Some Time With Elizabeth Holmes’ – MedCityNews, 12 September

August 2023

The fall of Babylon: Failed telehealth startup once valued at $2B goes bankrupt, sold for parts – TechCrunch, 31st August 2023

Flu jab IT system to be ‘switched off’ weeks before vaccine programme starts – HSJ, 30 August

Home Office interest in migrant records dates back to Theresa May – The Guardian, 29 August

Migrants to get Home Office reference number on NHS England records – The Guardian, 29 August

Is the data guardian hinting that Palantir should be ousted from NHS IT? – Computer Weekly 29 August

The Download: What the government didn’t say about its patient data sharing scheme – HSJ, 29 August 2023

NHS watchdog expresses vendor lock-in concerns over Federated Data Platform deal – The Register, 29 August

NHS England warned it needs to get public onboard for new data platform to work – TechMonitor.AI 25 August

NHS must address concerns about perceived advantage of bidders like Palantir, National Data Guardian – Computing, 25 August 2023

NHS England plans public communications effort over federated data platform – UK Authority, 25 August

Spy tech firm Palantir was shoo-in for NHS data deal, leaked emails suggest – OpenDemocracy, 21 August

US health firm given provisional go-ahead for £1.2bn takeover of EMIS – GP Online, 15 August 2023

BMA seeking legal advice on GP liability for shared records data breaches – Pulse, 15 August 2023

Fears over safety of YOUR sensitive data as shock probe reveals bungling NHS staff have wrongly handed over confidential data hundreds of times in last two years – Mail Online, 11 August 2023

Palantir lobbied UK pensions department for its software to tackle fraud – The Register, 9 August 2023

Palantir lobbied UK disabilities minister to use software to tackle benefits fraud – The Guardian, 8th August 2023

Will the NHS Federated Data Platform transform healthcare? – ITPro, 3 August

Foxglove launches campaign against FDP but Palantir hits back – Digital Health, 2 August

July 2023

Why can’t the NHS quit Palantir? – TechMonitor.AI, 24 July

Report criticises procurement progress for NHS Federated Data Platform – Digital Health, 6 July

Continuing disquiet on the data front – BMJ, 1 August

June 2023

How Palantir is strengthening its hold on NHS patient data – BMJ, 30 June 2023

Health Secretary promises to protect health technology money – Practice Business, 30 June 2023

NHS app uptake affected by demographics – Management in Practice, 30 June 2023

NHS England launches tender for new privacy enhancing technology – Digital Health, 28 June 2023

NHS England plans for privacy enhancing technologies – UK Authority, 26 June 2023

Mega-data platform worth half a billion will suck in info from family doctors – The Register, 23 June 2023

HSJ Weekly Catch-up: Homeless excluded, Palantir favoured and contract challenged – HSJ, 23 June 2023

NHS England posts £35m contract for privacy enhancing technologies – Computing, 23 June 2023

NHS England awards new contract to Palantir – UK Authority, 23 June

GPs concerned over patient data use as US company awarded £25m contract – Pulse, 21 June 2023

NHS mandate reaffirms EHR targets, delivery of federated data platform – Digital Health, 20 June 2023

Palantir awarded £25m NHSE deal to ‘transition’ to federated data platform – HSJ, 20 June 2023

NHS England awards £25 million contract to Palantir to transition to FDP – Digital Health, 20 June 2023

Illegal abortions: General Medical Council warns doctors should think carefully before reporting women to police – National World, 19 June 2023

GPs should lose ‘sole patient data controller’ role, says NHSE chief – HSJ, 19 June 2023

Government will ringfence money for health tech – Health Secretary – Digital Health, 15 June 2023

Twenty-four UK doctors in five years censured over medical record breaches – The Guardian, 13 June 2023

Tech firms may be asked to fund NHS ‘academy’ – HSJ, 9 June 2023

NHS Academy could turn to private companies for funding – Digital Health, 9 June 2023

Rishi Sunak to meet boss of ‘scariest’ US tech firm that wants jumbo NHS data contract – Mirror, 7 June 2023

UK to host major AI summit of ‘like-minded’ countries – Politico, 7 June 2023

Ministers accused of holding up IT skills funding – HSJ, 6 June 2023

UK mental health charities handed sensitive data to Facebook for targeted ads – The Observer, 3rd June 2023

AI has given Palantir its mystique back – Financial Times, 2 June 2023

May 2023

Individual data platforms for all health providers under controversial NHS plans – The Register, 31 May 2023

NHS sent Facebook private patient information – Computing, 30 May 2023

NHS data breach: trusts shared patient details with Facebook without consent – The Observer, 27 May 2023

NHS England says all NHS trusts and ICSs to get an FDP instance – Digital Health, 22 May 2023

Google succeeds in bid to throw out medical records claim – Independent, 22 May 2023

‘A very dangerous precedent’: doctors share concerns over Palantir bid for NHS England data contract – Yorkshire Bylines, 20 May 2023

There’s 18 months to shape health policy for the next 10 years – Pulse Today, 18 May 2023

Warnings over NHS data privacy after ‘stalker’ doctor shares woman’s records – The Guardian, 14th May 2023

‘I felt anger, fear and horror that she had obtained my data and shared it’ – The Guardian, 14th May 2023

Babylon shareholders wiped out in restructuring deal – Financial Times, 11 May 2023

Following Ferris: assessing the impact of Dr Tim Ferris on NHS IT – Digital Health 5th May 2023

NHS England’s digital chief Tim Ferris to leave in September – Digital Health, 4 May 2023

PATIENTS & JOB – Despite the misgivings of some about the dangers of sharing NHS patient data with data giant Palantir, it is hiring UK officials as it chases NHS contracts. – Private Eye, May 2023

UK government hopes NHS app revamp will reduce hospital waiting lists – TechMonitor, 2 May 2023

April 2023

Government reviews recommends increased patient involvement in GP records, Pulse, 18th April 2023

NHS considered using Palantir tech to manage strike disruption (but then opted for spreadsheets instead) – The Register, 17th April 2023

NHS data specialists oppose Palantir’s bid for £480mn contract – Financial Times, 16th April 2023

LloydsPharmacy shared customers’ sensitive data for targeted advertising – The Guardian, 15th April 2023

300 reasons why US ‘spy-tech’ firm Palantir processes NHS data – OpenDemocracy, 14th April 2023

UK Consortium unsuccessful in its bid for £480m Federated Data Platform – 13th April 2023

Report sets three-month deadline to remove ‘distracting’ central data requests – HSJ, 4 April 2023

Has Thiel Almost Secured his Treasured Trove of NHS Data? – International Policy Digest, 4 April 2023

March 2023

Craig Whittaker: The NHS can’t afford to pay for outdated technology – Conservative Home, 30 March 2023

‘Aggressive’ NHSE campaign insists trusts enable digital communications with patients – Health Service Journal, 31 March 2023

NHS Highland reprimand for HIV patient email data breach – BBC, 30 March 2023.

Nurse-patient boundaries: When relationships become over-friendly – Nursing Standard, 22 March 2023

Campaigners warn NHS still not transparent about FDP bidder – Digital Health, 21st March 2023

More Palantir controversy over claims leaked document ‘shows NHS data sharing’ – Tech Monitor, 20 march 2023

UnitedHealth’s buyout of UK’s EMIS could reduce competition: UK watchdog – The Register, 20th March 2023

Why Palantir’s latest NHS land-grab is such bad news for patients – OpenDemocracy, 17th March 2023

NHS threatened with legal action over £480m patient data platform – The register 17th March 2023

Earning the public’s trust on health data – Digital Health, 13th March 2023

UK Consortium unsuccessful in its bid for £480m Federated Data Platform – Digital Health, 13 April 2023

NHSE rejects British ‘alternative’ bid to run £480m data platform – HSJ, 12 April 2023

‘Worse than the last version’: Experts unimpressed with new Data Protection and Digital Information Bill – TechMonitor, 8th March 2023

Palantir’s Chequered History Makes its NHS Involvement Problematic – International Policy Digest, 8 March 2023

UK companies take on Palantir for £480m NHS data contract– TechMonitor, 1st March 2023

High profile Palantir and Foxglove debate to close Rewired 2023 – Digital Health, 1st March 2023

February 2023

UK consortium set to bid for £480 million NHS data platform – The Register, 28th February 2023

NHS turns to AI to solve its ‘missed appointments’ problem – TechMonitor, 27th February 2023

Government’s NHS digitisation progress rated ‘inadequate’ by expert panel – Pulse Today, 17th February 2023

Britain’s cherished NHS wrestles with its ‘reform or die’ moment – Japan Times, 13th February 2023

NHS brings in additional scrutiny for Federated Data Platform amid Palantir worries – TechMonitor, 10 February 2023

McKinsey wins £1m contract to devise new NHSE data model – HSJ, 10 February 2023

NHSE must ‘demonstrate it is trustworthy’ on data, says watchdog – Health Service Journal, 8th February 2023

Doubts about a database – BMJ, 7th February 2023

UK health minister confirms data platform worth £480m will replicate Palantir dashboards – The Register, 6th February 2023

January 2023

Emails show Hancock held talks to hand patient data and Covid test results to US tech firm – The Mirror, 21 January 2023

That NHS England patient data platform procurement, FDP, is live. And worth up to £480m – The Register, 11th January 2023

NHS England raises value of federated data platform – UK Authority, 11th January 2023

NHS agrees £11.5m Palantir contract extension as costs soar – TechMonitor, 9th January 2023

NHS England Palantir contract extension could result in further legal threats – The Register, 6th January 2023

Palantir gets £11.5m six-month NHS contract extension – Digital Health, 6th January 2023

2022

December 2022

Federated Data Platform Palantir juggernaut looks set to continue – Digital Health, 15 December 2022

November 2022

NHS breaks up £400mn data contract in response to privacy concerns – Financial Times, 25 November 2022

UK’s National Health Service will roll existing Palantir work into patient data platform – The Register, 21 November 2022

Privacy and security should be guiding principles of NHS federated data platform, says National Data Guardian – Identity Week, 18 November 2022

ID cards are a civil servant’s dream – and the public’s worst nightmare –
The Telegraph, 14 November 2022

Controversial £360m NHS England data platform ‘lined up’ for Trump backer’s firm – The Guardian, 13 November 2022

UK government set to extract hospital data to Palantir system without patient consent – The Register, 4 November 2022

NHS cyber attack hits patient care with records left in ‘chaos’ three months on – The I, 4 November 2022

‘Contentious’ US tech firm to harvest patient data in NHSE waiting list push – Patient Safety Learning Hub, 2 November 2022

October 2022

Nothing really happened in health this month, but it could be considered quite an eventful month elsewhere in Government.

September 2022

Peter Thiel’s Palantir Had Secret Plan to Crack UK’s NHS: ‘Buying Our Way In’ – Bloomberg, 30 September 2022

How to close the Goldacre data analysis gap – HSJ 2 September 2022

August 2022

Google sued over access to millions of NHS blood tests – The Telegraph, 28 August 2022

Trust and the Goldacre Review: why trusted research environments are not about trust – BMJ Journal of Medical Ethics – 23 August 2022

UK Caldicott Guardian Council meeting – UKCGC, 16 August 2022

NHS Digital moves to next stage for GPDPR rollout – Pulse, 11 August 2022

July 2022

Next update on Federated Data Platform expected in autumn – Digital Health, 28 July 2022

UK government refuses public review before launch of NHS data platform – The Register, 20 July 2022

Privacy in the age of digital medicine – Politico, 18 July 2022

June 2022

Palantir shares could soar if it’s awarded NHS contract – IG, 15 June 2022

Concerns that £360m data platform for NHS England is being set up to fail – The Register, 13 June 2022

May 2022

NHS Trusts advised to cut ties with clinical data platform Sensyne Health – Tech Monitor, 27th May 2022

Too Much AI May Not Be Good for Your Health or the NHS – Washington Post, 12th May 2022

Hundreds of organisations breached patient data rules, reveals BMJ – The Guardian, 11th May 2022

Hundreds of patient data breaches are left unpunished, reveals The BMJ – Medical Xpress, 11th May 2022

Hundreds of patient data breaches are left unpunished – British Medical Journal, 11 May 2022

Radical plans to transform NHS drawn up at drug firms and No 10 roundtable – The Guardian, 4th May 2022

April 2022

When is your data anonymous? – Digital Health, 26th April 2022

Government could become data controller for patient record copies – Pulse, 8th April 2022

March 2022

Plans to record mothers’ drinking habits on baby health records scrapped – The Independent, 16th March 2022

Doing Away With NHS Digital: Why it Matters – British Medical Journal, 2nd March 2022

February 2022

Mental health helpline funded by royals shared users’ conversations – The Guardian, 19th February 2022

January 2022

COVID-19: Technology developed to track spread of coronavirus could be abused, privacy campaigner warns – Sky news, 16th Jan 2022

2021

December 2021

2021 Review: The Government’s failed data grab – Pulse, 31st Dec 2021

October 2021

Thousands in York opt-out of sharing NHS records for ‘vital’ research – York Press, 15th Oct 2021

Sharing medical records with researchers: Assumed consent works in theory – just not yet in practice – The Register, 14th Oct 2021

Fears new crime Bill will force GPs to hand more confidential patient data to police – Pulse, 13th Oct 2021

Thousands in Preston block bid to share medical records – Lancashire Post, 13th Oct 2021

Patients must know how their health records are used – and approve any sharing for research – The Register, 12th Oct 2021

National Data Guardian calls for ‘commitment to transparency’ – Digital Health, 12th Oct 2021

UK government could face legal action over huge, secretive health database – Open Democracy, 11th Oct 2021

Plans to hand over NHS data to police sparks warning from government adviser – The Independent, 11th Oct 2021

Concerns raised over confidentiality and transparency in government data innovation – Computer Weekly, 5th Oct 2021

September 2021

‘Alexa, analyse my bowel movement’: Will every home soon have a smart toilet? – Irish Times, 29th Sept 2021

The smart toilet era is here! Are you ready to share your analprint with big tech? – The Guardian, 23rd Sept 2021

NHS App ‘storing facial recognition data with private tech company’ – Digital Health, 22nd Sept 2021

What the Tories want to do with our health data, and why we need to stop them – Open Democracy, 22nd Sept 2021

Patient trust in primary care data share – Practice Business, 17th Sept 2021

De-identify, re-identify: Anonymised data’s dirty little secret – The Register, 16th Sep 2021

August 2021

NHS data grab on hold as millions opt out – The Observer, 22nd August 2021

UK’s National Data Guardian warned about GP data grab being perceived as going ‘under the radar’ – The Register, 19th August 2021

July 2021

The miscommunication of GPDPR: incompetence or evasion of public scrutiny? – Tech Monitor, 30th July 2021

Ex-health secretary said ‘vast majority’ were ‘onside’ with GP data grab. Consumer champion Which? reckons 20 million don’t even know what it is – The Register, 29th July 2021

Almost half unaware of GP data-sharing plans – Computer Weekly, 29 July 2021

NHS health data sharing: what you need to know about your medical data and GPDPR – Which, 29th July 2021

NHS plan to share GP patient data postponed – but will new measures address concerns? – The Conversation, 27th July 2021

Government postpones GPGDPR – again – Computing, 21st July 2021

I was threatened with breach of contract during care.data – this is worse – Pulse, 21st July 2021

Snail mail would be a fool-proof way to inform patients about plans to slurp GP data, but UK govt won’t commit – The Register, 21st July 2021

NHS Digital tightens rules for GPDPR data scrape – Computer Weekly, 20th July 2021

Minister sets new criteria for collection of GP patient data – UK Authority, 20th July 2021

GPs must be ‘fully engaged’ with patient data-extraction scheme, says data guardian – Pulse, 20th July 2021

England’s controversial extraction of personal medical histories from GP systems is delayed for a second time – The Register, 20th July 2021

Patient trust in primary care data share – Practice Business, 12th July 2021

Thousands of patients hit by NHS data breaches – The Independent, 3rd July 2021

Your top 12 questions on England’s GP data grab – answered – Open Democracy, 2nd July 2021

Big Brother’s big data grab: GPs caught up in patient records controversy – Pulse, 2nd July 2021

June 2021

UK trade department courted US firm Palantir over ‘untapped’ NHS data potential – Politico, 29 June 2021

Rationale of GPDPR is there but trust issues need to be addressed – Digital Health, 29th June 2021

Backbench Tory campaigner promises judicial review of data grab of English GP patients unless UK government changes tack – The Register, 25th June 2021

BMA warns NHS Digital’s own confidentiality guardian could halt English GP data grab unless communication with public improves – The Register, 25th June 2021

NHS data strategy: Hancock defends data sharing plan – Practice Business, 24th June 2021

UK health secretary Matt Hancock follows delay to GP data grab with campaign called ‘Data saves lives’ – The Register, 22nd June 2021

Matt Hancock says ‘data saves lives’ and dismisses idea of sending letters to patients to tell them how they can opt out of controversial NHS data-sharing plan because ‘hardly anyone writes to you these days’ – Daily Mail, 22nd June 2021

NHS Digital gave GPDPR opt-out deadline ‘in error’; says GPs must set own dates – Pulse, 22nd June 2021

Data strategy: Put NHS patients ‘ahead of demands for profit’ – Digital Health, 22nd June 2021

GP data sharing: What is it and can I opt out? – BBC News, 22nd June 2021

Parents trying to opt children out of NHS Digital ‘data grab’ scheme complain after emails bounce back – i, 22nd June 2021

Matt Hancock defends plan to force NHS trusts to share patient records – Daily Mirror, 22nd June 2021

Government’s new NHS data plans welcomed by open source advocates, shunned by privacy experts – Computing, 22nd June 2021

UK gov’t defends NHS data sharing plans in strategy document – PharmaPhorum, 22nd June 2021

NHS Digital CEO says organisation needs to ‘face GPDPR challenge’ – Digital Health, 21st June 2021

NHS plans to centralise patient medical data cause privacy concerns – Law Gazette, 17th June 2021

UK government plans to collect and share NHS data are hugely concerning – here’s why – The Conversation, 15th June 2021

Information commissioner welcomes NHS data plan delay – Research Live, 15th June 2021

Patients to be given until 25 August to opt out of GP data extraction – Pulse, 14th June 2021

GPs will need to risk assess mass patient data extraction, says ICO – Pulse, 11th June 2021

Access to GPs’ patient data key to new treatments, researchers say – The Guardian, 10th June 2021

York GP welcomes delay to controversial patient records plan – York Press, 10th June 2021

‘Vast majority of people’ are onside with a data grab they know next to nothing about, reckons UK health secretary – The Register, 9th June 2021

Hancock asks former RCGP chair to help on derailed GP data project – Pulse, 9th June 2021

NHS data grab delayed by three months – Healthcare IT news, 9th June 2021

Bolton MP speaks out against sharing people’s NHS data – Bolton News, 8th June 2021

Pause in GP data sharing scheme must be used to ‘properly communicate’ with patients and clinicians, says RCGP – On Medica, 8th June 2021

Update: Government to delay controversial NHS data sharing plan – Computing, 8th June 2021

GP Data for Planning and Research implementation date moved to Sept – Digital Health, 8th June 2021

RCGP calls for immediate delay to patient data proposals – Practice Business, 8th June 2021

NHS patient data plans: Delay until September amid ‘confusion’ – York Press, 8th June 2021

Did We Learn Nothing from the Last NHS Health Data Grab? – Byline Times, 7th June 2021

BMA and RCGP issue joint letter to NHS Digital over GPDPR programme – Digital Health, 7th June 2021

Your NHS data set to be shared as opt-out deadline looms – The Voice, 7th June 2021

So who will have access to YOUR medical records? Within weeks, unless you opt out, the NHS will share your most private health details with outside companies. Researchers say it’s vital, but critics argue it’s a cynical data grab – Daily Mail, 7th June 2021

Doctors urge delay to England GP data scrape – BBC, 7th June 2021

UK’s Labour Party calls for delay to NHS Digital’s GP data slurp until patients can be properly informed – The Register, 7th June 2021

NHS Digital’s GP data-scraping plan must be publicised and delayed – Computer Weekly, 7th June 2021

The NHS data grab: why we should be concerned about plans for GPs’ records – Guardian Letters, 7th June 2021

NHS data opt-out: Can you still opt-out if you miss the deadline? – Daily Express, 7th June 2021

Plan for NHS to collect patient data from GPs should be delayed over privacy fears, says Labour – Sky News, 6th June 2021

The NHS thinks you should allow it to share your medical records next month, here’s why – Daily Express, 6th June 2021

The Tories have worked out how to pull off an NHS data grab: do it during a pandemic – The Guardian, 5th June 2021

Patient trust in plans to share primary care data – BMJ, 4th June 2021

What’s happening with your NHS data? – FullFact, 4th June 2021

Legal threat sharpens over UK government plans to harvest patient data from GPs – Open Democracy, 4th June 2021

NHS Digital is set to share patient’s medical records on new database – Southern Daily Echo, 4th June 2021

GPs are fighting NHS plans to share your medical records with private companies next month – Daily Express, 4th June 2021

No, the NHS isn’t selling your data – so what is this opt out all about? – Daily Express, 4th June 2021

NHS national data opt-out does NOT have September deadline – when do you have to opt out? – Daily Express, 4th June 2021

Doctors threaten legal action to halt ‘unlawful’ mass GP data extraction – Pulse, 4th June 2021

Calls to pause new GP data collection service gather speed – Digital Health, 4th June 2021

BCS: Lack of communication over NHS GPDPR ‘astonishing’ – Computer Weekly, 4th June 2021

Patient data transfer still set to start in July – BBC, 4th June 2021

Campaigners threaten legal action over ‘sneaky’ NHS data sharing plans – Metro, 4th June 2021

Your medical records are about to be given away. As GPs, we’re fighting back – The Guardian, 3rd June 2021

The Government’s Grab of GP Records Violates Our Trust – Byline Times, 2nd June 2021

GPs urged to refuse to hand over patient details to NHS Digital – The Guardian, 1st June 2021

How GP data is saving lives – Digital Health, 1st June 2021

Informing public of impending patient data extraction ‘must not be left to busy GPs’, RCGP warns – Pulse, 1st June 2021

May 2021

GPs warn over plans to share patient data with third parties in England – The Guardian, 30th May 2021

The NHS will allow businesses full access to your health data – Socialist Worker, 29th May 2021

Privacy experts concerned over NHS data collection plans – Computer Weekly, 28th May 2021

Matt Hancock has quietly told your GP to hand over your health data. Why? – Open Democracy, 28th May 2021

NHS England’s plans for use of our personal data leaves me very worried – The Independent, 28th May 2021

New data collection service could ‘destroy’ patient trust – Digital Health, 27th May 2021

You have until June 23 to stop the NHS sharing your medical records with outside third parties – Metro, 27th May 2021

Campaigners challenge NHS England’s latest plan to share patient data – PharmaPhorum, 26th May 2021

“Right, Listen, if you live in England, you’ve now got less than a month to opt out if you don’t want your medical records to be shared with external companies” – BBC Radio 5 live segment, 24th May 2021

Conflicting messaging overshadows NHS Digital’s attempts to inform public about patient data slurp – The Register, 24 May 2021

New GP data extraction ‘far exceeds’ care.data plans, warn privacy campaigners – Pulse, 24 May 2021

Mammoth grab of GP patient data in the UK set to benefit private-sector market access as rules remain unchanged – The Register, 17th May 2021

New primary care data collection service announced by NHS Digital – Practice Business, 14th May 2021

NHS Digital replaces system for collection of GP data – Computer Weekly, 12th May 2021

NHS Digital announces new primary care data collection service – digitalhealth, 12th May 2021

NHS Digital creates new extraction service for GP data – UKAuthority, 12th May 2021

NHS Digital revising Covid vaccine booking site after ‘users info leaked’ – digitalhealth, 6th May 2021

April 2021

Cross-party group of 70 MPs warn against ‘divisive and discriminatory’ domestic vaccine passports – Independent, 2nd April 2021

January 2021

Supporting the greater use of data sharing across healthcare – Digital Health, 19th January 2021

NHS Contract With US Tech Firm May Be ‘Massive Breach’ of Data Protection Law, Says medConfidential – Sputnik International, 11th January 2021

2020

August 2020

‘The Worst Possible Outcome’ – Tech Privacy Experts on the Problem with NHS Test and Trace – Vice Motherboard, 13th August 2020

July 2020

NHS contact-tracing app Ethics Board scrapped – Daily Telegraph, 23rd July 2020

Coronavirus: The inside story of how government failed to develop a contact-tracing app – Sky News, 21st July 2020

Government admits breaking privacy law with NHS test and trace – The Guardian, 20th July 2020

Coronavirus: England’s test and trace programme ‘breaks GDPR data law’ – BBC, 20th July 2020

Test and Trace programme unlawful, admits government – Computer Weekly, 20th July 2020

June 2020

‘No surprises’ proposed as new Caldicott Principle – UK Authority, 26th June 2020

NHS data watchdog calls for ‘no surprises’ rule in use of patient info – Public Technology, 25th June 2020

The NHS app has been abandoned but no app is necessary to trace government ineptitude – New Statesman, 24th June 2020

How coronavirus reshaped the NHS – Wired, 23rd June 2020

NHS Says Apple-Google Contact Tracing Tech ‘Inaccurate’ – Silicon.co.uk, 22nd June 2020

Coronavirus: What went wrong with the UK’s contact tracing app? – BBC, 20th June 2020

Fresh concerns over privacy and profit in NHS COVID data deals – Open Democracy, 19th June 2020

CDEI’s “independent” AI report for UK government slammed for corporate focus – New Statesman, 19th June 2020

Piloted in May, ditched in June: the failure of England’s Covid-19 app – The Guardian, 18th June 2020

Coronavirus: Ministers consider NHS contact-tracing app rethink – BBC, 11th June 2020

Babylon Health data breach: GP app users able to see other people’s consultations – The Guardian, 10th June 2020

Babylon Health admits GP app suffered a data breach – BBC, 9 June 2020

NHS Test and Trace Grows Hungrier for COVID-19 Patient Data – CPO magazine, 8th June 2020

NHS Covid-19 datastore contracts published under pressure from privacy groups – Computer Weekly, 5 June 2020

NHS Tracing App: We Shouldn’t Have to Sacrifice Our Privacy to Get Back to Normal – Gizmodo, 5th June 2020

Why Contact Tracing Apps Will Be The Biggest Test Yet Of Data Privacy Versus Public Safety – Forbes magazine, 1st June 2020

NHS Test and Trace Program Set for Legal Challenge Over Its Use of People’s Data – Gizmodo, 1st June 2020

May 2020

Coronavirus: researchers no longer need consent to access your medical records – The Conversation, 31st May 2020

Privacy group prepares legal challenge to NHS test-and-trace scheme – The Guardian, 31st May 2020

NHS will keep personal data of people with coronavirus for 20 years – Guardian, 28th May 2020

NHS test and trace privacy doc throws doubt on app’s “anonymity” claims – New Statesman, 28th May 2020

Public Health England will keep personal data of people with coronavirus for 20 years – The Guardian, 28th May 2020

Government Silent On Involving Credit Firm in COVID-19 Testing – Byline times, 22 May 2020

Government says no to new privacy legislation for NHSX contact tracing app – New Statesman, 22nd May 2020

‘Failed mishmash’ of privacy protections insufficient for NHS app users – Engineering & Technology, 20th May 2020

Open letter from digital rights groups to UK health secretary questions big tech’s role in NHS COVID-19 data store – The Register, 19th May 2020

Digital activists sound the alarm over UK’s ‘coronavirus datastore’ plans – ITPro, 18th May 2020

The privacy risks of the NHSX tracing app are both less and more serious than you think – New Statesman, 15th May 2020

Balancing the Two – GenomeWeb, 14th May 2020

NHS contact-tracing app ethics board kept in the dark over trial – Daily Telegraph, 11th May 2020

US surveillance company’s involvement with NHS is ‘crossing a red line’, warns civil liberties group – The Canary, 7th May 2020

Data from NHS contact-tracing app ‘to be kept for research purposes’ – Digital Health, 7th May 2020

Public urged to download NHS coronavirus tracing app amid questions over privacy and security safeguards – Independent, 4th May 2020

NHS coronavirus contact tracing app will ask users for personal details despite concerns about patients’ privacy – Daily Mail, 2nd May 2020

GCHQ Granted Access to NHS Data as Privacy Concerns Increase – Info Security, 1st May 2020

April 2020

Privacy International puts Palantir in the dock for NHS data analysis work – Computer Weekly, 29th April 2020

UK infosec experts flag concern over NHSX contact tracing app – New Statesman, 29th April 2020

NHSX sets up ethics advisory board to oversee contact-tracing app – Digital Health, 27th April 2020

Contact-tracing apps could ‘catastrophically’ hamper trust, academics warn – Digital Health, 23rd April 2020

‘Absence of evidence’ for Covid-19 contact-tracing apps, review finds – Digital Health, 22nd April 2020

NHSX must be ‘upfront’ about contact-tracing app, privacy group says – Digital Health, 20th April 2020

NHS coronavirus app: memo discussed giving ministers power to ‘de-anonymise’ users – The Guardian, 13th April 2020

UK government using confidential patient data in coronavirus response – The Guardian, 12th April 2020

How will the NHS Covid-19 contact-tracing app work and when will it go live? – New Statesman, 2nd April 2020

Doctors Turn To ‘80s Tech’ In Coronavirus Battle, Despite Tech Giant Claims And ‘Shiny’ New Toys – Forbes, 2nd April 2020

March 2020

Covid-19, the UK’s Coronavirus Act and emergency ‘remote’ court hearings: what does it mean for open justice? – The Justice Gap, 30th March 2020

Privacy concerns raised by COVID-19 symptom checking app – Techworld, 27th March 2020

‘Important’ patient data sharing deadline delayed due to covid-19 – Health Service Journal, 23rd March 2020

UK coronavirus app ‘must respect privacy rights’ – BBC, 23rd March 2020

UK government may trace COVID-19 patients using mobile phone data – ITPro, 20th March 2020

NHS Digital to be handed more powers to help counter Covid-19 spread – Digital Health, 18th March 2020

All bets off as children’s data is leaked – ITPro, 10th March 2020

UK.gov is not sharing Brits’ medical data among different agencies… but it’s having a jolly good think about it – The Register, 9th March 2020

February 2020

This was meant to be the year the NHS went digital. What happened? – Wired, 27th February 2020

‘Your Medical History is Being Fed to an AI Without Your Consent’, Interview with Phil Booth – Techround, 26th Feb 2020

Exclusive: NHS at risk of sharing patient data unlawfully – Health Service Journal, 18th Feb 2020

UK Government sells millions of NHS patients’ medical data to US drugs giants after wrongly stating it would be ‘anonymous’, experts claim – The Daily Mail, 9th February 2020

Revealed: how drugs giants can access your health records – The Observer, 8th Feb 2020

Will having longer, healthier lives be worth losing the most basic kinds of privacy? – The Guardian, 3rd Feb 2020

Health data is something that must be utilised, not demonised – Politics Home, 3rd February 2020

Can big tech be trusted with your health? – The Daily Telegraph, 2nd Feb 2020

January 2020

NHS bosses handing over patient data to Telefonica in moneyspinner for phone company – The Mirror, 25th Jan 2020

Google says it can save lives, but would you trust it with your health data? – Financial Post, 24 January 2020

Can we ever trust Google with our health data? – Financial Times, 20th Jan 2020

2019

December 2019

NHS ‘risks repeat of care.data in talks to commercialise medical records’ – Digital Health, 19 December 2019

Everyone should be worried by big tech’s huge NHS data grab – Wired, 16th December 2019

Revealed: NHS England bosses meet with tech and pharmaceutical giants to discuss price list of millions of Brits’ medical data – The Register, 12th December 2019

Privacy organisations raise concerns about Amazon’s use of NHS data – Healthcare IT News, 10th December 2019

Privacy International questions usage of NHS data by Amazon’s Alexa – Government Computing, 10th December 2019

Worldwide, perpetual, irrevocable and royalty-free: Amazon’s Alexa NHS contract released – The Register, 9th December 2019

GP patient data ‘sold to US pharma firms’ by Government service – Pulse, 9th December 2019

NHS data is a goldmine. It must be saved from big tech – The Guardian, 9th December 2019

Privacy group attacks NHS-Amazon deal – UKAUthority, 9th December 2019

‘Alexa, what is transparency?’ Government criticised for hiding details of Amazon data deal – Sky News, 9th December 2019

The Guardian view on Boris Johnson’s NHS plan: trading patient data – The Guardian, 8th December 2019

Conservative government giving NHS data to Amazon for free, documents reveal – The Independent, 8th December 2019

Patient data from GP surgeries sold to US companies – The Observer, 7th December 2019

DeepMind founder behind NHS data slurp to be beamed up to Google mothership – The Register, 6th December 2019

The US-UK trade deal could see corporations profit from NHS patient information – The Canary, 3rd December 2019

November 2019

NHS staff ‘uncomfortable with tech giants handling patient data’ – Digital Health, 26th November 2019

Transparency concerns over secret government data projects – The Bureau of Investigative Journalism, 14th November 2019

ICO concerned by mass health data-sharing with advertisers – IT Pro, 13th November 2019

Google: You can trust us with the medical data you didn’t know we already had – Ars Technica, 12th November 2018

October 2019

Alexa, where are the legal limits on what Amazon can do with my health data? – TechCrunch, 24th October 2019

Google has used contract swaps to get bulk access terms to NHS patient data – TechCrunch, 22nd October 2019

Google gets green light to access FIVE YEARS’ worth of sensitive patient data from NHS, sparking privacy fears – Daily Mail, 18 Oct 2019

Google gets green light to access five years of NHS patient data – New Scientist, 17th October 2019

Why We Should Be Concerned By How Our Government Collects Our Data – Huffington Post, 7th October 2019

Lewisham and Greenwich NHS trust criticised after sharing data with credit reference company – South London Press, 4th October 2019

September 2019

Revealed: Mass use of credit check firm to find NHS patients to charge – HSJ, 30 Sept 2019

Google is taking over DeepMind’s NHS contracts – should we be worried? – New Scientist, 27 Sept 2019

Five NHS trusts do DeepMind data deal with Google. One says no – The Register, 19 Sept 2019

NHS trusts give Google green light to process confidential patient data – The i, 18 Sept 2019

NHSX emphasises need for ethical patient data access – Computer Weekly, 16 Sept 2019

Boris Johnson Secretly Asked For A Massive Amount Of User Data To Be Tracked. Dominic Cummings Said It’s “TOP PRIORITY”. – BuzzFeed, 10 Sept 2019

NHS gender identity clinic discloses email contacts of 2,000 patients – The Guardian, 6th Sep 2019

Michael Gill: Patient data for sale – BMJ, 2nd September 2019

NHS reports protester to Prevent for joining Extinction Rebellion – The Guardian, 1 September 2019

August 2019

£250m fund for NHS artificial intelligence laboratory slammed as tech for tech’s sake – The Register, 12th August 2019

One London to begin ‘deliberative’ dialogue on data use, privacy and consent – Digital Health, 5th August 2019

Londoners are suspicious of sharing information outside the NHS, study finds – Healthcare IT News, 5th August 2019

July 2019

DeepMind touts predictive healthcare AI ‘breakthrough’ trained on heavily skewed data – TechCrunch, 31st July 2019

Heathrow Airport and NHS Digital join ICO sandbox projects – ITPro, 31st July 2019

Could The NHS Really Sell Its Data For $12 Billion? – Forbes magazine, 24th July 2019

NHS data worth £9.6bn per year, says Ernst & Young – Digital Health, 24th July 2019

NHSX to oversee data-sharing agreements under new DHSC guidance – Digital Health, 24th July 2019

Privacy in the age of digital medicine – Politico, 18th July 2019

Amazon Alexa partnership puts patient data ‘at risk’ – Digital Health, 10th July 2019

MPs call for national debate over government’s digital ID card plans – SkyNews, 10th July 2019

Oh good. This’ll go well. Amazon’s Alexa will offer NHS advice – The Register, 10th July 2019

Amazon Alexa-NHS partnership splits expert opinion – BBC, 10th July 2019

England’s NHS is embracing ‘big data’. But who’s really benefiting? – Open Democracy, 3rd July 2019

June 2019

UK public concerned about tech firms profiting from NHS data – PharmaPhorum, 10th June 2019

Genome sequencing ‘revolution’ in diagnosis of sick children – BBC, 10th June 2019

Make no mistake, one way or another NHS data is on the table in America trade talks – The Times, 8th June 2019

Big tech firms cannot be trusted with anonymous NHS data, survey suggests – ITV, 8th June 2019

NHS laptop and mobile thefts rise by one third – Open Access Government, 7th June 2019

May 2019

Watchdog issues warning over government patient data sharing – Health Service Journal, 28th May 2019

DHSC bans trusts from exclusive deals – Health Service Journal, 23rd May 2019

LGA points to need for stronger data security among care providers – UKAuthority, 20th May 2019

Health Secretary blind to £35M impact of Babylon’s ‘GP at Hand’ Service – Byline Times, 10th May 2019

NHS to launch data-sharing hubs with trial in Manchester – ITPro, 7th May 2019

The Way of the Wild West; Calls for an Inquiry over Babylon ‘GP at Hand’ App – Byline times, 3rd May 2019

The hidden harms of “genomic volunteering” – BMJ, 3rd May 2019

April 2019

‘Biggest obstacle’ in digitising healthcare is privacy, Wachter warns – Digital Health, 26th April 2019

Technology will only transform medicine if we get privacy right – Wired, 23rd April 2019

Home Office used suicidal girl’s medical records to reject family’s asylum claim – Sunday Times, 14th April 14 2019

Personal data on new mothers and babies sold to third parties – Financial Times, 12th April 2019

The potential of technology to build the most advanced health and care system in the world – Open Access Government, 3rd April 2019

March 2019

‘I’d share any data to stay alive longer’: the progress of digital public services – The Guardian, 22nd March 2019

Campaigners cry foul over NHS Digital plans to grant policy wonks and researchers access to patient-level data – The Register, 22nd March 2019

Revealed: National plan to share ‘rich detail of clinical encounters’ – Health Service Journal, 22nd March 2019

Health apps pose ‘unprecedented’ privacy risks – BBC, 21st March 2019

The messy, cautionary tale of how Babylon disrupted the NHS – Wired, 18th March 2019

Lack of clarity around data sharing risks ‘irreparable mistrust’, NHS Digital chief warns – Digital Health, 15th March 2019

Fiona Caldicott appointed first statutory National Data Guardian for health – Digital Health, 14th March 2019

Confused data policy risks ‘almost irreparable’ mistrust – NHS data boss – Health Service Journal, 13th March 2019

National data guardian role becomes statutory – UKAuthority, 12th March 2019

National data guardian for health and social care placed on statutory footing – Healthcare IT news, 12th March 2019

Your Health Data Are a Gold Mine for Advertisers – The Atlantic, 8th March 2019

The Download: Selling patient data – Health Service Journal, 6th March 2019

Government could automatically access GP patient data for benefits assessments – Pulse, 4th March 2019

February 2019

The purpose of LHCREs has always been clear – if you were paying attention – Digital Health, 26th February 2019

Code of conduct for data-driven health and care tech – UKTN, 26th February 2019

DWP plans to obtain people’s medical data will deter benefit claimants accessing healthcare, doctors warn – The Independent, 26th February 2019

Benefits staff want permission to trawl through patient records – The Times, 26th February 2019

Guess who’s working on a health data-slurping digital tool? Bzzt! Nope, it’s the UK Department for Work and Pensions – The Register, 19th February 2019

Whose Genome Is It Anyway? Big Data and Your DNA – BioNews, 11th February 2019

The NHS should run a mile from the genome sequencing goldrush – The Guardian, 7th Feb 2019

Home Office still using NHS patient data for immigration enforcement despite suggesting it would end practice – Independent, 4th February 2018

The future of your health could soon be in the NHS’s hands – The Spectator, 2nd February 2019

January 2019

NHS plan to sell genome sequencing to healthy people is premature – The Conversation, 31st January 2019

Over 150 NHS staff accused of snooping on patients’ records – Sunday Times, 27 January 2019

NHS to offer paid-for DNA tests if patients share data – BBC, 26th January 2019

NHS to sell DNA tests to healthy people in push to find new treatments – The Guardian, 26th January 2019

Patient experience surveys exempted from national data opt-outs – DigitalHealth, 21st January 2019

NHS surveys exempted from 1.6m patients’ data sharing opt-outs – Health Service Journal, 14th January 2019

2018

December 2018

Hacker-besieged DNA data tucked away under military care – Naked Security, 7th December 2018

November 2018

Home Office is seeking new ways to obtain GP data on patients – Pulse, 21st November 2018

Google takeover of NHS-linked health app is ‘Totally unacceptable’, privacy lawyer says – The Independent, 14th November 2018

Google swallows up DeepMind Health and abolishes ‘independent board’ – The Register, 14th November 2018

Why Google consuming DeepMind Health is scaring privacy experts – Wired, 14th November 2018

Google accused of ‘trust demolition’ over health app – BBC, 14th November 2018

Google ‘betrays patient trust’ with DeepMind Health move – The Guardian, 14th November 2018

Home Office scraps scheme that used NHS data to track migrants – The Guardian, 12th November 2018

Whose genome is it anyway? – Bionews, 5th November 2018

October 2018

UK Government Funding For NHS Data Privacy Research – JD Supra, 30th October 2018

Brace yourself, Britain: Health minister shares ‘vision’ for NHS ‘tech revolution’ – The Register, 18th October 2018

Government IT plans to see all GP patient records accessed via the cloud – Pulse, 18th October 2018

Everything you need to know about Matt Hancock’s tech vision for the NHS – ComputerWorld UK, 18th October 2018

UK Health and Social Care Secretary outlines plans to introduce mandatory open standards – MobiHealthNews, 17th October 2018

Hancock sets out NHS tech vision – Computer Weekly, 17th October 2018

Poor uptake of new scheme to give patients control of confidential records – Health Service Journal, 12th October 2018

UK.gov asks biz for ideas on how to ‘overcome’ data privacy concerns in NHS – The Register, 3rd October 2018

Leeds heralds launch of GP Connect – DigitalHealth, 3rd October 2018

September 2018

Women want the NHS to stop giving commercial sales reps unlimited access to them just hours after they gave birth – The i, 26th September 2018

Matt Hancock’s plan for an NHS tech revolution is doomed to fail – Wired, 8 September 2018

Government publishes code of conduct for AI and data-driven healthcare tech – DigitalHealth, 7th September 2018

August 2018

UK.gov told data-sharing plans need vendor buy-in – The Register, 17 August 2018

Rebooting trust in the government’s data drive – Public Finance, 16 August 2018

July 2018

‘Data is a fingerprint’: why you aren’t as anonymous as you think online – Guardian, 13 July 2018

‘Coding’ cockup blamed for NHS cough-up of confidential info against patients’ wishes – The Register, 3rd July 2018

NHS glitch led to 150,000 patients’ data accidentally shared against their will – IT Pro, 3 July 2018

DeepMind, NHS use anonymized patient data in AI to avoid regulatory hurdles – Tech Republic, 2 July 2018

150,000 GP records wrongly shared as patient data opt-out preferences ‘not upheld’ – Pulse, 2 July 2018

UK NHS will anonymise private medical data for use in AI systems – Silicon Republic, 2 July 2018

June 2018

Privitar wins contract with NHS Digital to boost patient privacy – UKTN, 29 Jun 2018

Now NHS Digital is going after data on private healthcare too – The Register, 26 June 2018

Is the government telling us the truth about GDPR and our NHS medical data? – OpenDemocracy, 25 June 2018

Information Commissioner urges NHS Trusts to prioritise privacy – Pharma Phorum, 13 June 2018

Audit of DeepMind deal with NHS trust: It checks out, nothing to see here – The Register, 13 June 2018

Patients trust NHS with their data but still wary about use, survey suggests – Digital Health, 8th June 2018

NHS Digital ‘dumped data storage responsibility’ on hospitals – Cloud Pro, 7 June 2018

May 2018

The Guardian view on AI in the NHS: a good servant, when it’s not a bad master – The Guardian, Tuesday 22nd May 2018

PM says tech companies should use AI as a weapon in cancer fight – Digital Health, 21st May 2018

Government to revise memorandum of understanding between NHS Digital, the Home Office and the DHSC – Practice Business, 11th May 2018

Government Pledge To End NHS Data-Sharing With Immigration Enforcers ‘Worryingly Vague’ – Huffington Post, 10th May 2018

UK Home Office tiptoes back from slurping immigrants’ NHS files – The Register, 9th May 2018

Government forced to stop making NHS give patient data to immigration officials for minor infractions – Independent, 9th May 2018

GP data to be protected from immigration officers after ministers reverse position – Pulse, 9th May 2018

NHS will no longer have to share immigrants’ data with Home Office – Guardian, 9th May 2018

NHS staff aren’t border guards. We won’t police the ‘hostile environment’ – Guardian, 8th May 2018

Why data sharing fears could be catastrophic for the NHS – Med-tech news, 3rd May 2018

Doctors Mock Up Theresa May’s ‘Go Home’ Vans To Protest Home Office Use Of NHS Data – Huffington Post, 2nd May 2018

April 2018

NHS shared care records: progress, projects and privacy – Computer Weekly, 24 April 2018

Two thirds of Brits willing to let NHS collect personal data for research – Pulse, 24th April 2018

Data and digital infrastructure key to genomic sequencing success, say MPs – Computer Weekly, 23rd April 2018

Medical research needs big data – Tessa Jowell gets the ball rolling – The Guardian, 22nd April 2018

GPs ‘intimidated’ into handing over patient data to police – Pulse, 20th April 2018

MPs raise ‘serious concerns’ over NHS Digital stewardship of data – Out-law, 18th April 2018

Select committee inflames row over NHS Digital and Home Office data-sharing agreement – PR Week, 18th April 2018

UK report urges action to combat AI bias – TechCrunch, 16th April 2018

NHS Digital execs showed ‘little regard’ for patient ethics by signing data deal – The Register, 16th April 2018

NHS Digital “failing” to uphold patient interest – refuses to stop sharing data with Home Office – Diginomica, 16th April 2018

MPs criticise NHS Digital/Home Office data sharing deal – Pharma Times, 16th April 2018

Public backs sharing patient details with immigration, says NHS – PharmaPhorum, 16th April 2018

MPs turn up heat on NHS digital over data sharing – UKAuthority, 16th April 2018

MPs criticise NHS Digital/Home Office data sharing deal – Pharma Times, 16th April 2018

NHS is unable to protect patient data properly, says Commons committee – Daily Mirror, 15th April 2018

Stop sharing NHS data with Home Office, officials told – Daily Telegraph, 15th Apr 2018

NHS in data sharing row as senior MP condemns snooping on ‘MOST VULNERABLE’ – Daily Express, 15th April 2018

Government ‘failing to act on serious concerns about NHS data sharing’ raised by doctors – Independent, 15th April 2018

Home Office sharing NHS data shows ‘blatant disregard’ for GP-patient trust – GP magazine, 15th April 2018

Health Select Committee takes on ministers over ‘serious concerns’ about NHS Digital’s data-sharing MoU – Kable Government Computing, 15th April 2018

MPs attack NHS Digital for ‘inappropriate’ sharing of GP patient data – Pulse, 15th April 2018

GP leaders brand immigration officers’ request for patient address ‘appalling’ – Pulse, 12th April 2018

Data policy move to DCMS causes mixed reactions – ComputerWeekly, 3rd April 2018

March 2018

Local Health and Care Record Exemplar bid invites issued – digitalhealth, 22nd March 2018

NHS slammed for Data Sharing with Home Office – Computer Business Review, 19th Mar 2018

NHS must stop giving out patients’ private details – The Times, 15th March 2018

NHS Digital heads accused of being ‘suppliers’, not ‘custodians’ of UK patient data – The Register, 15th March 2018

The UK’s NHS will trust data to foreign powers – DatacenterDynamics, 14th March 2018

Two-Fifths of NHS Staff Break Policy Via WhatsApp Use: Report – InfoSecurity Magazine, 12th March 2018

GP practices told to review 44,000 patient records after data loss glitch – Pulse, 5th March 2018

Big pharma, big data: Why drugmakers want your health records – The Star (Malaysia), 4 March 2018

Data could be a huge source of funding for the NHS and we are about to give it away – The Times, 3rd March 2018

High Court grants legal challenge against NHS-Home Office deal to hand over patient data to immigration officials – The independent, 1 March 2018

NHS Digital rejects MPs calls to stop sharing patient data with immigration officials – The Inquirer, 1 March 2018

GP patients ‘should expect’ data to be shared with the Home Office, says Government – Pulse, 1 March 2018

February 2018

Immigration officials to continue to seek NHS England patient data – The Guardian, 28 February 2018

Stop slurping NHS data to enforce immigration laws? Not on your nellie, huffs UK Home Office – The Register, 28 February 2018

Are sick migrants avoiding NHS doctors over deportation fears? – BBC, 22 February 2018

Immigration agency asked GP to deliver deportation notice to patient – GP Online, 22 February 2018

January 2018

Govt ‘comprehensively ignored’ advice over NHS data-sharing deal – The Register, 31 January 2018

NHS chiefs urged to stop giving patient data to immigration officials – The Guardian, 31 January 2018

MPs Demand NHS Stops Handing Data To Home Office Immigration Enforcers – Huffington Post, 31 January 2018

Patient information shared with immigration officials – PracticeBusiness, 29 January 2018

Migrant women are being scared away from the NHS because the Home Office is taking data from patient records – The Independent, 27 January 2018

NHS OKs offshoring patient data to cloud providers stateside – The Register, 22 January 2018

Care organisations urged to follow Euro lead on data – UKAuthority, 22 January 2018

NHS Digital declares the public cloud a safe place to store patient data – Computer Weekly, 22 January 2018

Cloud computing: Now hospitals can keep confidential patient records in the public cloud – ZDnet, 22 January 2018

Government advises that NHS data can be safely hosted in the US and other countries – PublicTechnology.net, 20 January 2018

Government could take control of data ethics in draft Data Protection Bill – Techworld, 18 January 2018

UK.gov slammed for NHS data-sharing deal with Home Office – The Register, 17 January 2018

Pregnant and ill migrants ‘too scared to see a doctor,’ health experts warn – Sky News, 16 January 2018

Lung cancer patients’ medical records sent to US company linked with tobacco giant Philip Morris – Independent, 16 January 2018

Domestic worker died because she was too frightened to access healthcare over immigration fears, MPs told – Independent, 16 January 2018

Health bosses hand medical records of 180,000 British lung cancer patients to US firm working for one of world’s biggest tobacco companies – Daily Mail, 15 January 2018

Health officials accused of failing to carry out ‘basic checks’ before data on cancer sufferers was ‘plundered’ – Daily Telegraph, 15 January 2018

Nearly 180,000 NHS lung cancer patients’ data handed to firm linked to tobacco giant – Evening Standard, 15 January 2018

Think tank: Never mind WannaCry, update NHS IT systems for RoboDoc – The Register, 11 January 2018

Ethics for healthcare data is obsessed with risk – not public benefits – The Conversation, 5 January 2018

2017

December 2017

NHS England to use live seasonal illness data to plan winter capacity – Pulse, 19th December 2017

Can De-Identified Health Data Be Re-Identified? – Huffington Post, 18 December 2017

No hack needed: Anonymisation beaten with a dash of SQL – The Register, 18 December 2017

November 2017

NHS cyber unit welcomed with cautious optimism by privacy and security groups – ComputerWorld UK, 29 November 2017

NHS data not fit for AI, Lords select committee told – Computer Weekly, 23 November 2017

UK.gov told to tread carefully with transfer of data sets to NHS Digital – The Register, 20 November 2017

UK’s ICO issues stark reminder of backlash for privacy invasion – We Live Security, 20 November 2017

NHS accused of breaching doctor-patient confidentiality for helping Home Office target foreigners – Independent, 9 November 2017

Activists launch legal challenge against NHS patient data-sharing deal – The Register, 9 November 2017

Govt faces legal fight over Home Office access to NHS patient data – Politics.co.uk, 9 November 2017

Buried in a government bill, an immigration rule strips millions of their data protection – Politics.co.uk, 3 November 2017

October 2017

Algorithms, Henry VIII powers, dodgy 1-man-firms: Reg strokes claw over Data Protection Bill – The Register, 30 October 2017

Government ‘shamelessly attempting’ to give itself power to spy on people’s details for ‘immigration control’ – Independent, 24 October 2017

Sharing patient data would open door to next-generation NHS using ‘artificial intelligence’, Government told – The Independent, 16 October 2017

The government’s report on AI doesn’t recommend regulating it – Wired, 14 October 2017

DeepMind now has an ethics unit – which may have helped when it ate 1.6m NHS patient details – The Register, 4 October 2017

DeepMind now has an AI ethics research unit. We have a few questions for it… – TechCrunch, 4 October 2017

September 2017

NHS Digital directed to replace type two opt-outs – Digital Health, 29 September 2017

NHS IT leaders fear harm to patients from widespread hacking of confidential data – Information Age, 26 September 2017

Mass NHS data sharing plan will not allow ‘simple opt out’ despite ministers’ pledges – Daily Telegraph, 19 September 2017

The big data revolution: the high price of a force for good – Daily Telegraph, 16 September 2017

Jeremy Hunt to unveil plans for digital-led NHS treatment by 2018 – The Guardian, 11 September 2017

Nosey’ NHS worker accessed 398 patient records without permission at Royal Stoke University Hospital – Stoke Sentinel, 8 September 2017

AI has no place in the NHS if patient privacy isn’t assured – Wired, 5th September 2017

August 2017

Documents detail DeepMind’s plan to apply AI to NHS data in 2015 – TechCrunch, 31st August 2017

Building health AIs should be UK ambition, says strategy review – TechCrunch, 31st August 2017

Use of healthcare data must improve, says report – ComputerWeekly, 31st August 2017

UK needs to act urgently to secure NHS data for British public, report warns – The Guardian, 30th August 2017

Pssst… wanna participate in a Google DeepMind AI pilot? Be careful – The Register, 23rd August 2017

Anonymous hacker says they stole 1.2 million NHS patients’ data – Cluley Associates, 22nd August 2017

NHS 1.2 million patient name database hacked ‘to expose weaknesses’ – SC magazine, 21st August 2017

Anonymous hacker claims to have stolen private data on up to 1.2million NHS patients – The Sun, 18th August 2017

Nosey ex-NHS staffer slapped with fine for illegally peeking at medical records – The Register, 14th August 2017

July 2017

Bupa employee stole half a million customers’ health insurance data – DigitalHealth.net, 19th July 2017

Digital service to allow patients to track how their NHS data is used – PublicTechnology.net, 13th July 2017

DH pledges £50m to safeguarding NHS digital security – National Health Executive, 13th July 2017

Government confirms national opt-out for patient data – Digital Health, 12th July 2017

Government response to Caldicott promises further £21m cyber investment – Digital Health, 12th July 2017

Doctors using Snapchat to send patient scans to each other, panel finds – Guardian, 5th July 2017

Google DeepMind report fails to justify use by the NHS, claim privacy campaigners – Techworld, 5th July 2017

Why are we giving away our most sensitive health data to Google? – Guardian, 5th July 2017

The Guardian view on patient data: we need a better approach – Guardian, 5th July 2017

Chief medical officer calls for gene testing revolution – BBC, 4th July 2017

DeepMind held 1.6 million people’s health records unlawfully, but no one’s getting fined for it – Quartz, 4th July 2017

NHS broke the law by sharing 1.6 million patient records with Google’s DeepMind health team – The Sun, 4th July 2017

Royal Free breached UK data law in 1.6m patient deal with Google’s DeepMind – The Guardian, 3rd July 2017

Google DeepMind NHS medical trial broke UK privacy law – BBC, 3rd July 2017

Google DeepMind’s NHS data deal ‘failed to comply’ with law – New Scientist, 3rd July 2017

Royal Society: UK ‘Needs’ New Data Protection Watchdog – Silicon.co.uk, 3rd July 2017

June 2017

The challenges surrounding patient data sharing – The Stack, 27th June 2017

Privacy, consent laws under ‘unprecedented strain’. We need a data-watcher watcher – The Register, 30th June 2017

DeepMind Health inks another 5-year NHS app deal in face of ongoing controversy – TechCrunch, 22 June 2017

The NHS Needs To Get To Grips With Patient Privacy – Huffington Post, 22nd June 2017

May 2017

The Guardian view on Google’s NHS grab: legally inappropriate – Guardian, 17 May 2017

Google DeepMind 1.6m patient record deal ‘inappropriate’ – Guardian, 16 May 2017

Google DeepMind NHS data deal was ‘legally inappropriate’ – New Scientist, 16 May 2017

Google DeepMind’s 1.6m UK medical record slurp ‘legally inappropriate’ – The Register, 16 May 2017

Google received 1.6 million NHS patients’ data on an ‘inappropriate legal basis’ – Sky News, 20:10 BST, Monday 15 May 2017

A leaked letter is battering DeepMind’s arguments that it stayed within health data privacy laws – Quartz, 15 May 2017

Google DeepMind received 1.6 million NHS patient records through a legally inappropriate deal – Business Insider, 15 May 2017

DeepMind NHS health data deal had ‘no lawful basis’ – Tech Crunch, 15 May 2017

Is GP record sharing safe? – Pulse, 11 May 2017

Cambridge academic calls on health sector to stop using term ‘data ownership’ – PublicTechnology.net, 11 May 2017

NHS deal to hand GP data to immigration officials causing ‘serious risk’ – Pulse, 2 May 2017

April 2017

Public Health England warns of ‘serious risk’ over Home Office data sharing – Independent, 29th April 2017

PHE warns of ‘serious risk’ over Home Office data sharing – Health Service Journal, 28 April 2017

Digital Economy Act becomes law – Kable Government Computing, 28th April 2017

NHS not doing enough to help police prevent terror attacks, warns Met’s counterterrorism chief – Daily Telegraph, 26th April 2017

Government’s information tsar to review data-sharing deal following row over patient confidentiality – PR Week, 26 April 2017

GPs register migrant patients as ‘no fixed abode’ to block Home Office tracking – GP Online, 21 April 2017

Crackdown on migrants forces NHS doctors to ‘act as border guards’ – Guardian, 20 April 2017

Peers: Government needs a credible NHS innovation strategy – and should penalise those that don’t engage – PublicTechnology.net, 5 Apr 2017

Half a million ‘de-identified’ patients records to be shared in Bradford – The Register, 5 April 2017

NHS Digital plans September go-live for citizen identity service – Computer Weekly, 5 Apr 2017

March 2017

TPP sharing furore a reminder of the long shadow cast by care.data – Digital Health, 24 Mar 2017

ICO moves to calm controversy over TTP patient data sharing – Digital Health, 21 Mar 2017

ICO concerned about TPP’s GP IT system’s data sharing compliance – Computer Weekly, 21 Mar 2017

Privacy-unaware GP surgeries put patient records at risk with ‘enhanced data sharing’, claim campaigners – The Inquirer, 20 Mar 2017

Big Read: What does Google DeepMind want with the NHS? – Digital Health, 20 Mar 2017

Security breach fears over 26 million NHS patients – The Daily Telegraph, 17 Mar 2017

Google DeepMind Deal with NHS Contained ‘Inexcusable’ Mistakes – InfoSecurity, 17 Mar 2017

Google’s Deepmind NHS deal ‘inexcusable’, says academic paper – The Register, 16 Mar 2017

Here are all the deals that Google’s AI lab DeepMind has made with the NHS – Business Insider, 16 Mar 2017

DeepMind accused of ‘inexcusable’ failings in its data deal with the NHS – Wired, 16 Mar 2017

“Inexcusable” mistakes made in Google DeepMind and Royal Free NHS data deal – study – Pharma Times, 16 Mar 2017

NHS Scotland launches GP information sharing system – Computer Weekly, 9 Mar 2017

DeepMind says no quick fix for verifying health data access – TechCrunch, 9 Mar 2017

Google’s DeepMind building health data audit tool to counter transparency fears – DigitalHealth.net, 9 Mar 2017

Google’s DeepMind plans bitcoin-style health record tracking for hospitals – Guardian, 9 Mar 2017

Scotland rolls out national patient data extraction scheme – Pulse, 8 March 2017

How trustworthy is NHS Digital? – Open Democracy, 6 March 2017

February 2017

NHS patient letters meant for GPs went undelivered for years – The Register, 27 Feb 2017

NHS accused of covering up huge data loss that put thousands at risk – Guardian, 27 Feb 2017

John Manzoni: Care.data was a ‘misstep’ that ‘put us back a long way’ – PublicTechnology.net, 21 Feb 2017

NHS Digital dodges further ICO data opt out regulation – Health IT central, 15 Feb 2017

NHS Digital avoids regulatory action from ICO over data opt-out errors – Public Technology.net, 13 Feb 2017

ICO rules out regulatory action over NHS Digital data opt out concerns – Kable Government Computing, 10 Feb 2017

Ministers Accused Of “Out-Trumping Trump” Over Use Of Health Data To Track Alleged Illegal Immigrants – Buzzfeed, 10 Feb 2017

Joe’s View: Privacy, where next? – Digital Health.net, 9 Feb 2017

UK government’s huge citizen data grab is go—where are the legal safeguards? – Ars Technica, 9 Feb 2017

NHS Digital “working through” healthcare IoT complexity – Kable Government Computing, 7 Feb 2017

NHS urged to share data so patients can be deported – The Conversation, 6 Feb 2017

The Guardian view on the digital economy bill: a last chance to get it right – The Guardian, 5 Feb 2017

January 2017

Move to implement patient ‘data lake’ scheme – DigitalHealth.net, 30 Jan 2017

The NHS should protect patient confidentiality – Guardian letters, 27 Jan 2017

NHS hands over patient records to Home Office for immigration crackdown – The Guardian, 24 Jan 2017

Lords slam ‘untrammelled’ data sharing powers in Digital Economy Bill – The Register, 20 Jan 2017

Home Office refuses to enforce privacy code on NHS staff using video – The Guardian, 18 Jan 2017

New national NHS patient “data lake” proposed based on STPs – Digital Health.net, 18 Jan 2017

NHS England moots regional-level data collection to support national analytics – Public Technology.net, 19 Jan 2017

Privacy issues drive health IT consumer skepticism: 10 Black Book survey findings – Becker’s Health IT & CIO review (USA), 3 Jan 2017

Understanding the care.data conundrum: New information flows for economic growth – Big Data & Society (Academic journal), 1 Jan 2017

2016

December 2016

The NHS refused to reveal how much it’s paying Google’s DeepMind – Business Insider, 24/12/16

Google app aids London hospital health checks – BBC, 23/12/16

Patients Should Own Their Medical Records! – Health IT central, 12/12/16

NHS Digital sees off patient privacy challenge – DigitalHealth.net, 6/12/16

November 2016

Civil servants under fire over Digital Economy Bill drafting as Parliamentary scrutiny bites – Kable Government Computing, 23/11/16

DeepMind hits back at criticism of its NHS data-sharing deal – Wired, 22/11/16

Google DeepMind, NHS partnership sparks privacy fears – Fierce Healthcare, 22/11/16

DeepMind has signed a major new deal with the NHS despite concerns about patient privacy – Business Insider, 22/11/16

NHS using Google technology to treat patients – BBC News, 22/11/16

Google’s DeepMind agrees new deal to share NHS patient data – New Scientist, 22/11/16

The public get the chance to manage their own medical files – Economist, 19/11/16

Benefits of digital patient tools in the NHS uncertain, says think tank – Computer Weekly, 18/11/16

NHS Digital boss Andy Williams resigns – Public Technology.net, 16/11/16

‘The principle of ownership brings notions of it being someone’s property – therefore sellable’ – Health IT Central, 9/11/16

Consultation outcome over Caldicott proposals to be released soon – Health IT central, 3/11/6

Data Collection And Patient Privacy – A Balancing Act – Health IT central, 2/11/6

NHS England sets up info governance network – UK Authority, 2/11/16

October 2016

Data confidentiality row intensifies ahead of crucial ruling – HSJ, 26/10/16

Opt-outs have been honoured – NHS Digital – DigitalHealth.net, 21/10/16

Working towards a national consent model – DigitalHealth.net, 21/10/16

NHS patients must be taught to share their data, says EU lobby group – The Register, 18/10/16

NHS Digital’s plans for a digital NHS – DigitalHealth.net, 17/10/16

Trust a doctor? Many don’t: Third of people worry the NHS will share their personal data – Daily Mail, 17/10/16

Government claims open data successes – PublicTechnology.net, 17/10/16

The Guardian view on data sharing: the privacy of citizens is being eroded – Guardian, 16/10/16

Google DeepMind has doubled the size of its healthcare team – Business Insider UK, 11/10/16

Caldicott 3: Easy to say, hard to do? – Digital Health, 6/10/16

September 2016

Clinicians key to building public trust around sharing patient data – Computer Weekly, 28/9/16

GP data-sharing scheme rises from the dead – Pulse, 27/9/16

Scrapped NHS care.data ballsup cost taxpayer almost £8m – The Register, 27/9/16

Scrapped care.data ‘cost £8.1m’ claim – Health IT Central, 27/9/16

NHS handed over GP data to 150 groups against patients’ wishes – Pulse, 27/9/16

Data breaches ongoing as NHS Digital pushes opt-outs – DigitalHealth.net, 26/9/16

NHS Digital grapples with thousands of patient data breaches – Health Service Journal, 23/9/16

It’s time for a public debate about data sharing – Prospect, 22/9/16

Building a new social norm for health data – Prospect, 22/9/16

King’s Fund calls for “definitive” NHS digital funding strategy – Kable Government Computing, 22/9/16

Is open data the key to healthcare transformation? – Diginomica, 22/9/16

The NHS’ Digital Ambitions Must Be Bolder – Huffington Post, 21/9/16

Care.Data – A post-mortem – ITProPortal, 19/9/16

UK.gov oughta get its data-sharing house in order before Digital Economy Bill plans – The Register, 19/9/16

Caldicott: future of patient opt-outs a ‘challenge’ – DigitalHealth.net, 8/9/16

Diagnosis.com – patients will be able to download medical files with new digital version of NHS 111 – Daily Mirror, 7/9/16

Government to launch another data harvesting initiative, says “out of date” NHS Digital plan – UKAuthority, 6/9/16

Patient data consent model ‘to be launched in March’ – Health Service Journal, 6/9/16

NHS ‘paperless roadmap’: Fewer dead trees, more data control – The Register, 6/9/16

Shadow of defunct care.data looms over patient record sharing progress – Kable Government Computing, 2/9/16

MPs warn that NHS teams have “significant problems” getting access to data – Diginomica, 2/9/16

Health committee calls for rethink of NHS data sharing practices – Public Technology.net, 1/9/16

‘Significant problems’ with data access in public health – DigitalHealth.net, 1/9/16

August 2016

Government opens consultation on new patient record centralisation plans – Computing, 25/8/16

NHS in consultation for patient records system to replace care.data – V3, 25/8/16

Care.data concerns as new platform proposed – DigitalHealth.net, 25/8/16

Is a care.data replacement waiting in the wings? – HealthIT central, 25/8/16

Stealth plan to sell UK patient health data – Politico, 22/8/16

Do we need to care about the closure of care.data? – BioMed Central, 19/8/16

Care.data is dead – long live care.data? – OpenDemocracy, 19/8/16

Future NHS: What if people controlled their own health data? – GP Magazine, 19/8/16

NHS Care.Data 2.0: What Should It Look Like? – TechWeek Europe, 18/8/16

Care.data – dead or alive? – Computer Weekly, 8/8/16

Some benefits of digital health to the NHS may be delayed by consent model consultation, says expert – Out-law, 8/8/16

Campaigners fear care.data plans still live – DigitalHealth.net, 4/8/16

Care.data: gone but not forgotten – DigitalHealth.net, 3/8/16

July 2016

Why the closure of care.data is bad news for the NHS and society – Guardian, 19/7/16

Care.data has been scrapped, but your health data could still be shared – The Conversation, 12/7/16

Decision to scrap NHS data grab welcomed in West – Plymouth Herald, 11/7/16

Patients should have more control over how their medical data is used, says Caldicott – Out-law, 7/7/16

How the NHS got it so wrong with care.data – Daily Telegraph, 7/7/16

A viable shot at a better NHS has been killed off by privacy paranoia – Guardian, 7/7/16

UK government takes surgeon’s knife to controversial NHS Care.data scheme – Ars Technica, 7/7/16

Government drops care.data – UKAuthority, 7/7/16

A cynical day to bury the NHS care.data controversy – Diginomica, 7/7/16

Government pulls plug on care.data programme – OnMedica, 7/7/16

NHS England single patient database scrapped – 7/7/16

Controversial mega-database of medical records scrapped over privacy concerns – Independent, 7/7/16

CQC revamps health and social care data security guidance – Kable Government Computing, 6/7/16

UK.gov’s hated Care.data project binned – The Register, 6/7/16

NHS trusts need to prioritise data security, says Fiona Caldicott – Computer Weekly, 6/7/15

NHS England scraps controversial Care.data programme – Computer Weekly, 6/7/15

NHS care.data scheme closed after years of controversy – Wired, 6/7/15

Controversial care.data plans scrapped as reports question how NHS uses data – GP Online, 6/7/16

NHS England scraps care.data project – Computing, 6/7/16

NHS England scraps controversial care.data project – V3, 6/7/16

Controversial £7.5 million NHS database scrapped quietly on same day as Chilcot Report – Daily Telegraph, 6/7/16

NHS to scrap single database of patients’ medical details – Guardian, 6/7/16

UK patients should have greater data slurp opt-out powers – report – The Register, 6/7/16

Case for data sharing ‘still needs to be made to the public’, says Caldicott – National Health Executive, 6/7/16

Prepare for ‘strengthened’ inspections into data security, CQC tells GPs – Pulse, 6/7/16

June 2016

The Home Office Is Accessing Thousands Of People’s NHS Data To Trace Illegal Immigrants – BuzzFeed News, 7/6/16

May 2016

NHS told to strengthen data security after leaks – The Times, 25/5/16

GPhC issues sanctions to Pharmacy2U directors – Chemist & Druggist, 25/5/16

New figures reveal up to 1.5m people opt-out of Care.data – Health IT central, 20/5/16

Consistent minority of patients opting out of having data shared – National Health Executive, 18/5/16

Exclusive: Google’s NHS deal does not have regulatory approval – New Scientist, 13/5/16

UK.gov is about to fling your data at anyone who wants it. How? Why? Shut up, pleb – The Register, 13/5/16

Should the NHS share patient data with Google’s DeepMind? – Wired, 11/5/16

56 Dean Street fined £180,000 by ICO – DigitalHealth.net, 9/5/16

UK data watchdog dishes out brace of fines to NHS after serious breaches – Ars Technica, 9/5/16

Cyber security is critical to the future of the NHS – DigitalHealth.net, 5/5/16

Google’s NHS deal does not bode well for the future of data-sharing – Guardian, 5/5/16

It’s barmy to hand our health secrets to Google – the world’s greediest snooper – Daily Mail, 5/5/16

Google’s DeepMind shouldn’t suck up our NHS records in secret – Guardian, 4/5/16

How to stop Google seeing your private medical history – Business Insider UK, 4/5/16

Google given access to healthcare data of up to 1.6 million patients – The Guardian, 4/5/16

NHS shares medical records of 1.6 million patients with Google as part of data-sharing agreement – The Independent, 4/5/16

If Google has nothing to hide about NHS data, why so secretive? – New Scientist, 4/5/16

Google AI given access to health records of 1.6 million English patients – Ars Technica, 3/5/16

Controversy as Google given access to NHS patient data – The Daily Telegraph, 3/5/16

Google handed health records of 1.6 MILLION NHS patients, sparking privacy fears – The Sun, 3/5/16

Google handed patients’ files without permission: Up to 1.6million records – including names and medical history – passed on in NHS deal with web giant – Daily Mail, 3/5/16

Google given access to London patient records for research – BBC, 3/5/16

Minister says NHS needs more data sharing – UKAuthority, 3/5/16

April 2016

Google AI gains access to 1.2m confidential NHS patient records – The Register, 29/4/16

Revealed: Google AI has access to huge haul of NHS patient data – New Scientist, 29/4/16

Care.data could be delayed again as DH sits on completed reviews – Pulse, 26/4/16

1.2m patients continue to be ignored over objections to record sharing – Pulse, 20/4/16

Guidance on consent and opt-outs for patient data sharing delayed – ComputerWeekly, 20/4/16

HSCIC to commence patient data sharing opt outs this month – Government Computing, 20/4/16

One million patients have opted out of Care.data – The Register, 20/4/16

NHS care.data records still being shared with third parties due to Department of Health delays – ComputerWorld UK, 14/4/16

Pharmacy2U directors face fitness to practise committee over sale of patient data – The Pharmaceutical Journal, 7/4/16

March 2016

Study shows patients support record sharing – UK Authority, 10/3/16

Trust in data use necessary for potential of big data to be realised in health sector, says expert – Out-Law, 9/3/16

Brits still not happy about commercial companies using their healthcare data – The Register, 9/3/16

Hands off our health records, say 1 in 6 UK adults – New Scientist, 9 March 2016

Government to review £500m-worth of Atos contracts after IT failure – The Guardian, 6/3/16

February 2016

‘GP patients won’t be identified from sick note records’ – Pulse, 16/2/16

De-anonymising data should be a criminal offence, says MPs report – The Register, 12/2/16

House of Commons Science and Technology Committee calls for Data Ethics Council – Computer Weekly, 12/2/16

MPs say Whitehall data still stuck in silos – UKAuthority, 12/2/16

Personal data privacy breaches ‘should carry a jail term’ – Daily Mail, 12/2/16

Privacy advocates left out of NHS care.data ‘oversight’ board – The Register, 8/2/16

Health Secretary promises NHS £4.2bn to go ‘digital’ – The Register, 8/2/16

700,000 patients continue to have data sharing objections ignored – Pulse, 5/2/16

January 2016

GPs told to inform patients of ‘state snooping’ on sick note records – Pulse, 24/1/16

NHS Cyber Security ‘Far Weaker Than Thought’ – Tech Week Europe, 20/1/16

Theresa May refuses to say whether UK spies access medical data –
BBC, 13/1/16

2015

December 2015

MPs slam mandarins over failed GP IT system – The Register, 31/12/15

GP records database delayed at ‘huge cost’ to taxpayer – The Telegraph, 31/12/15

November 2015

HSCIC to commence patient data opt outs from January – Kable Government Computing, 30/11/15

NHS England to create new technology officer role – Kable Government Computing, 26/11/15

What is the digital legacy of Tim Kelsey? – Digital Health, 26/11/15

Patient opt-outs actioned by January – DigitalHealth, 24/11/15

HSCIC is sharing data of patients who opted out of care.data – Computing, 24/11/15

700,000 care.data opt-outs finally get to come off the database – dataIQ, 24/11/15

NHS patient data-sharing opt-outs must be honoured by January 2016, says ICO – Computer Weekly, 24/11/15

Patients to finally have data-sharing objections honoured – Pulse, 2/11/15

October 2015

GPs’ care.data concerns ‘could resurface’, warns data guardian – Pulse, 28/10/15

Flawed GP data extraction system ‘misspent public money’ – GP Online, 27/10/15

Public trust is key to sharing health data successfully, says Fiona Caldicott – Computer Weekly, 27/10/15

Online pharmacy fined for selling user data to lottery company and others – Sophos Naked Security, 22/10/15

BMA calls for jail sentences after pharmacy found to have sold NHS patient data – GP Online, 21/10/15

NHS underinvests in data capabilities, says Public Health England chief knowledge officer – Computer Weekly, 1/10/15

September 2015

Data privacy fears undermining patient safety, RCGP chair tells Labour conference – GP magazine, 29/9/15

How can we trust the NHS with ‘big data’ if it can’t even get an app store right? – Diginomica, 28/9/15

Why it’s no surprise that NHS accredited smartphone apps are leaking data – Computing, 28/9/15

NHS-approved health apps put patient privacy and health at risk, says study – Ars Technica, 25/9/15

NHS-approved apps found ‘leaking’ ID data – BBC, 25/9/15

NHS apps caught sending unencrypted health data – V3, 25/9/15

What next for NHS Care.data plan after its leader Tim Kelsey quit? – Computer Weekly, 24/9/15

Do you know what happened to your data? – StatsLife, 24/9/15

Tim, Telstra, and the tech takeover of the NHS – Open Democracy, 22/9/15

Care.data – an in-depth check-up on NHS England’s controversial bid to join up health data – Civil Service World, 18/9/15

Tim Kelsey quits NHS, leaving controversial care.data behind – IT Pro, 18/9/15

Care.data head to leave NHS England for private sector role – Civil Service World, 18/9/15

Care.data lead Tim Kelsey resigns from NHS England – Pharma Times, 17/9/15

Tim Kelsey resigns from NHS England – Computing, 17/9/15

Care.data chief Tim Kelsey to leave NHS England – Computer Weekly, 17/9/15

Government adviser leaves controversial NHS data scheme for private sector – Guardian, 17/9/15

Architect of UK’s hated Care.data scheme quits NHS, flees from Britain – The Register, 17/9/15

CCG care.data pilot work continues – Kable Government Computing, 10/9/15

NHS England claims care.data ‘is not paused’ – Computing, 9/9/15

Right, opt out everybody! Hated Care.data paused again – The Register, 8/9/15

Care.data on hold again – DigitalHealth.net, 7/9/15

NHS care.data pilots paused so that it can clear up wording on opt-outs – Computing, 7/9/15

Care.data pilots delayed until January – Civil Service World, 7/9/15

NHS England’s controversial Care.data programme on hold again – Computer Weekly, 7/9/15

Care.data pilot in Somerset paused – Government Computing News, 4/9/15

Care.data ‘paused’ yet again due to confidentiality review – Pulse, 4/9/15

The care.data consensus? A qualitative analysis of opinions expressed on Twitter – BMC Public Health, 2/9/15

August 2015

Patients will resist medical record sharing if NHS bosses ignore their privacy fears – The Conversation, 19/8/15

Care.data is a complete omnishambles, says study into hated scheme – The Register, 12/8/15

Pharmacists hit back at ‘misleading’ patient data article – Pharma Times, 12/8/15

The public is right to worry about data-sharing – Daily Telegraph letters, 12/8/15

Care.data and access to UK health records: patient privacy and public trust – Technology Science, 11/8/15

Sharing all our personal data is stupid and dangerous – Daily Telegraph, 11/8/15

Personal health data belongs to patients – Telegraph editorial, 10/8/15

Boots, Tesco and Superdrug to get access to NHS medical records – Daily Telegraph, 10/8/15

GPs in care.data pilots prepare for scheme’s launch – GP Online, 4/8/15

Care.data director Tim Kelsey: the mastermind behind the NHS GP data project – ComputerWorld UK, 3/8/15

July 2015

Care.data opt out ignored by commissioners, campaigners claim – Health Service Journal, 29/7/15

Patient data must be safeguarded – Guardian Letters, 28/7/15

Almost 2% of patients have opted out of care.data before awareness campaign begins – Pulse, 24/7/15

Just 2% of patients opt out of care.data, says minister – GP Online, 24/7/15

Care.data concerns dismissed as ‘scare stories’ by NHS data chief – ComputerWorld UK, 23/7/15

NHS backs down over private data: Demands for millions of confidential files are abandoned after leaked letter sparks privacy row – Daily Mail, 22/7/15

GP system suppliers data request dropped – Digital Health.net, 22/7/15

NHS boss demands health information for MILLIONS of Britons – and it could identify YOU – Daily Express, 21/7/15

NHS England requests data on GP appointments to support case for seven-day working – Pulse, 21/7/15

NHS circumvents GPs to obtain confidential patient data – Ars Technica, 21/7/15

NHS denies personal information will be shared in appointments row – Computing, 21/7/15

PM plans patient data grab in proposals for seven-day NHS – The Guardian, 21/7/15

Why does Downing Street want details of all your appointments with your doctor? – Our NHS, 21/7/15

Privacy storm over GP visits: NHS official demands details of millions of confidential appointments – Daily Mail, 20/7/15

We must convince the public that researchers need access to medical records – BMJ, 17/7/15

Care.data trial practices unveiled as objection concerns remain – Kable Government Computing, 13/7/15

Sir Tim Berners-Lee seeks revival of plan to open up NHS data – Financial Times, 10/7/15

Wales considers care.data-style record sharing – Pulse, 9/7/15

Just 12 GP practices sign up to test care.data in largest pilot region – Pulse, 8/7/15

NHS IT system for GP data upload slammed for delays and overspend – Computer Weekly, 2/7/15

NHS IT failures mount as GP data system declared unfit for purpose – The Register, 2/7/15

GP data system GPES ‘flawed, delayed and over budget’, audit finds – GP Online, 2/7/15

Audit Office slams IT system for GP records – OnMedica, 2/7/15

NHS IT: Another project over budget, late and with a functionality shortfall – ComputerWorld UK, 2/7/15

GP extraction service was ‘fundamentally flawed’, Government auditors find – Pulse, 2/7/15

IT system for GP records criticised – BBC, 2/7/15

NAO gives thumbs down to GP Extraction Service – UK Authority, 2/7/15

June 2015

Care.data, NHS Choices and now Apps – could it be three failures in a row for Tim Kelsey? – Computing, 30/6/15

Four UK major IT projects headed for disaster, report claims – MISCO News, 30/6/15

NHS care.data still leaks like a sinking ship, but ministers set sail regardless – The Conversation, 30/6/15

“Unachievable” care.data programme should serve as warning to Government-as-a-Platform agenda – Diginomica, 30/6/15

NHS England hits back at highly critical Care.data report – Health Service Journal, 29/6/15

Watchdog: Universal Credit, Care.Data Need ‘Urgent Action’ – TechWeek Europe, 29/6/15

Care.data ‘looks unachievable’, says Whitehall watchdog – Pulse, 29/6/15

NHS patient data plans unachievable, review finds – The Guardian, 26/6/15

Hated Care.data scheme now ‘unachievable’, howls UK.gov watchdog – The Register, 26/6/15

Care.data needs urgent action to succeed, warns watchdog – IT Pro, 26/6/15

Care.data’s MPA ‘red’ risk rating may be out of date – Kable Government Computing, 26/6/15

Care.data is ‘unachievable’ says Major Projects Authority – Computer Business Review, 26/6/15

Care.data is ‘unachievable’, says Whitehall watchdog – ComputerWorld UK, 25/6/15

‘Whitehall, we have a problem with 21 major IT projects,’ warns Major Projects Authority – Computing, 25/6/15

HSCIC confident in care.data – Digital Health.net, 25/6/15

Care.data: main milestones for controversial health data sharing scheme – ComputerWorld UK, 22/6/15

Care.data to restart this month – Local Government Chronicle, 15/6/15

ID card for every child in Scotland – Scottish Express, 14/6/15

NHS faces backlash over Care.data restart in Blackburn – Computer Business Review, 12/6/15

Blackburn with Darwen to lead care.data reboot – UK Authority, 12/6/15

Care.data project to restart later this month – Computing, 12/6/15

Care.data scheme due to restart despite ongoing privacy concerns – IT Pro, 12/6/5

NHS England yet to finalise care.data extraction launch date – Kable Government Computing, 12/6/15

Care.data re-launched this month – Digital Health.net, 11/6/2015

Controversial NHS England Care.data project set to restart – Computer Weekly, 11/6/15

GPs prepare to contact patients individually as care.data is relaunched in some areas – Pulse, 10/6/15

NHS to hunt out patients who are costing too much: Bosses will trawl records to identify most frequent visitors to A&E – Daily Mail, 9/6/15

GP records to be shared without patient permission to tackle ‘high cost’ patients – Pulse, 9/6/15

Up to 700,000 NHS patients had their data released, despite opting out – Ars Technica, 9/6/15

NHS Patients’ Data Shared Against Their Wishes – Sky News, 6/6/15

Data on 700,000 NHS patients ‘available to third parties’: Details being shared despite patients asking for them to be kept secret – Daily Mail, 6/6/15

Confidential NHS patient data being passed on ‘against wishes’ – ITV, 6/6/15

NHS data passed on ‘against wishes’ – Press Association, 6/6/15

Nearly 1 million patients could be having confidential data shared against their wishes – Daily Telegraph, 6/6/15

NHS details released against patients’ wishes, admits data body – Guardian, 6/6/15

Care.data loose ends need tying up now – Health Service Journal, 4/6/15

NHS fails to cope with care.data opt outs – UKAuthority, 5/6/15

Care.data: the economic value of data versus the public interest? – Stats Life, 3/6/15

NHS blows £5 MILLION on delayed Care.data – The Register, 2/6/15

Baroness Ludford: Respond to the 700,000 requests to opt out of medical data sharing – Politics Home, 2/6/15

May 2015

Survey highlights patients concerns about sharing personal health data – Cambridge Network, 14/5/15

Delay to 700,000 patient opt-outs – DigitalHealth.net, 12/5/15

What are the IT headaches facing the next government? – ComputerWorld UK, 7/5/15

Local GP data sharing schemes ‘open practices up’ to legal challenges – Pulse, 6/5/15

NHS overriding 700,000 patient opt-outs to GP data being shared – Pulse, 5/5/15

Could Google look after our NHS data? – Daily Mail, 4/5/15

April 2015

NHS tops the list for serious data breaches last year – ComputerWorld, 9/4/15

March 2015

EU ministers back data privacy changes – eHealth insider, 23/3/15

NHS England has some sneaky plans for Care.data acceleration – The Register, 20/3/15

Ethical frameworks and APIs dominate open data discussion – Kable Government Computing, 20/3/15

MP calls for halt to care.data roll-out – Birmingham Press, 17/3/15

Data advisory group to disband – eHealth insider, 16/3/15

Privacy and the 100,000 Genome Project – Guardian, 10/3/15

NHS care.data – a horribly botched operation – Computing, 8/3/15

CQC could use care.data information for intelligent monitoring – Pulse, 6/3/15

All power to the LibDems for standing up for our liberties in database debate – The Herald, 5/3/15

Maternity leave minister returns to help SNP avoid ID database defeat – Daily Telegraph, 4/3/15

MSPs debate ‘super ID database’ plans – BBC, 4/3/15

Time to wake up to this grave threat to our privacy – The Herald, 4/3/15

Scottish Government wins ID database showdown – The Scotsman, 4/3/15

Independent oversight body for care.data to be scrapped – Pulse, 4/3/15

NHS Care.data ‘can never be 100 per cent secure’ – Computing, 3/3/15

NHS England to launch care.data standards testing within weeks – Kable Government Computing, 3/3/15

Care.data on hold until election – eHealth Insider, 2/3/15

Watchdog: SNP plan for super-database could create national ID number for every Scot – Herald, 2/3/15

Scottish identity database plans carry privacy risk, ministers warned – Guardian, 2/3/15

Development of a Scottish Population Register/ID Card Scheme is subject to ICO criticism – Hawktalk, 2/3/15

February 2015

Scottish plans for central identity database spark privacy criticism – Guardian, 25/2/15

HSCIC promises not to count care.data opt outs at GP practice level – Pulse, 23/2/15

Plans to share NHS data with tax agency ‘risk breaking down trust’ – STV, 22/2/15

Labour calls for NHS data sharing plans to be dropped – The Courier, 22/2/15

NHS: Campaigners attack plans to share patients’ personal data with taxman – Daily Record, 22/2/15

Care.data 2.0: why its ‘Big Data’ approach should be reconsidered – Stats Life, 16/2/15

No date for care.data report response – eHealth Insider, 11/2/15

Majority of care.data pilots expected to begin ‘before May’ – Pulse, 10/2/15

Clarification concerns leave Caldicott unsure of care.data timing – Kable Government Computing, 10/2/15

Shed light on big data – ethics report – 4/2/15, eHealth Insider

Medical researchers and health care providers must consider moral as well as legal questions on data use, says bioethics body – Out-Law, 4/2/15

Let public have greater say over big health data – New Scientist, 3/2/15

Just because you can does not mean you should — commercial and clinical research exploitation of personal digital information – Computer Weekly, 3/2/15

Report: Public Big Data initiatives need moral framework to succeed – Fierce Biotech, 3/2/15

Abuse of health data deserves JAIL, thunders ethics body – The Register, 3/2/15

Government told to make it easier to opt out of care.data database – Independent, 3/2/15

‘Public should be consulted on NHS medical data-sharing scheme’ – Guardian, 3/2/15

Health advances using ‘big data’ at risk, ministers warned – Financial Times, 3/2/15

Concerns over use of health data – Press Association, 3/2/15

Public participation should be at the heart of big data projects – phys.org, 3/2/15

Science 2.0: Public Buy-In – And Penalties For Misuse – Essential For Big Data Success – Science, 2/2/15

ICO given expanded health data audit powers – Kable Government Computing, 2/2/15

Single opt-out “needed” for patient data – EHI, 2/2/15

January 2015

NHS data privacy plans ‘flawed’ – SC Magazine, 29/1/15

Care.data refuseniks will be DENIED CANCER SCREENING invites – The Register, 28/1/15

‘Anonymous’ NHS database could still allow patients to be identified, expert warns – Independent, 26/1/15

NHS information centre forced to write to potentially ‘millions’ of patients after care.data error – Pulse, 23/1/15

The social licence for research: why care.data ran into trouble – BMJ, 23/1/15

NHS disregards patient requests to opt out of sharing medical records – Guardian, 22/1/15

Patients miss out on bowel cancer screening after opting out of care.data – Pulse, 22/1/15

Care.data in “last chance saloon” – eHealth Insider, 22/1/15

NHS director argues big data in healthcare is a ‘moral obligation’ – care.data relaunched – diginomica, 20/1/15

NHS England rounds on critics as care.data relaunches – Pharma Times, 16/1/15

Fresh Patient Confidentiality Care.Data Concerns Arise – 24n.biz, 14/1/15

NHS relaunches controversial Care.data initiative to drive big data use in healthcare – V3, 13/1/15

NHS boss claims patient data collection is ‘morally right’ – IT Pro, 13/1/15

Care.data and big data will fill ‘dangerous gaps’ in NHS and futureproof it with genomics, argues Tim Kelsey – Computing, 13/1/15

Medical Records Scheme May Identify Patients – Sky News, 13/1/15

NHS refused to pull ‘unfit for purpose’ Care.data leaflet – The Register, 7/1/15

NHS was informed that care.data leaflets were ‘not fit for purpose’ before £1m rollout – Computing, 7/1/15

HSCIC readies secure data facility for care.data programme – Computing, 6/1/15

HSCIC secure care.data facility to open by March – Kable Government Computing, 6/1/15

HSCIC secure care.data facility to open by March – eHealth Insider, 5/1/15

2014

December 2014

Care.data review raises questions – eHealth Insider, 19/12/14

NHS watchdog raises 27 questions over Care.data before roll-out can proceed – Computer Weekly, 18/12/14

Care.data: Caldicott calls for NHS to answer areas of concern – Computing, 18/12/14

Care.data extractions on hold until NHS England satisfies GP concerns – Pulse, 18/12/14

Care.data practice pilots will not start until 2015 – Pulse, 16/12/14

Need to repeat “inadequate consultation” could further delay NHS care.data data-sharing programme – Out-Law, 15/12/14

MPs say Care.data programme should be put on hold – Computing, 12/12/14

Care.data faces more delays over concerns about patients – Computer Weekly, 12/12/14

What future is there for UK’s Care.data info sharing scheme? – The Register, 12/12/14

Launch date for care.data trial uncertain – Kable Government Computing, 12/12/14

Care.data trial date in doubt – IT Pro, 12/12/14

Controversial NHS patient data sharing pilot scheme may be delayed until 2015 – Guardian, 11/12/14

HSCIC reviews data releases to police – eHealth Insider, 9/12/14

November 2014

NHS to carry on selling patient records to insurers – Daily Telegraph, 27/11/14

Why sharing medical data could be good for your health – Daily Telegraph, 27/11/14

NHS to carry on selling patients’ medical data to insurance firms despite history of blunders over illegal use of the information – Daily Mail, 27/11/14

Care.data: a year of bungling and confusion – Stats Life (newsletter of the Royal Statistical Society), 25/11/14

NHS suffered six data breaches every day since 2011, study finds – ComputerWorld, 14/11/14

NHS data is snooped on six times every day: Staff caught looking at records of friends, family and even love rivals – Daily Mail, 14/11/14

Campaign calls for patients to choose who can access their GP record through care.data – Pulse, 10/11/14

NHS to approve health care apps for GPs to prescribe – Pulse, 4/11/14

October 2014

Fears that patient data will be disclosed under new care.data scheme – Practice Business, 24/10/14

Doctors urged to adopt default opt-out approach to care.data scheme – Out-Law, 23/10/14

Blanket care.data opt out by GPs does not breach Data Protection Act – GP Online, 22/10/14

Roundtable: Where should Care.data go from here? – Health Service Journal, 22/10/14

GP records soon wide open again: Just walk into a ‘safe haven’ – The Register, 17/10/14

Don’t trust bumbling public officials and opt out of this NHS data disaster – Sunday Express, 12/10/14

Care.data pilots to start in GP practices – ComputerWorld UK, 9 Oct 14

CCGs to host care.data test-runs revealed – The Commissioning Review, 8/10/14

Care.data goes ahead with CCG pilot – Computer Weekly 8/10/14

NHS medical records to be stored in regional data centres – Guardian, 8/10/14

Storm as NHS gives go-ahead to patient database despite concerns: Pilot scheme will involve 1.7million people unless an individual specifically ops out – Daily Mail, 8/10/14

GPs to contact patients individually to explain care.data opt-out – Pulse, 7/10/14

GPs could opt all patients out of care.data opt under data protection laws, information office says – Pulse, 6/10/14

GPs practices can opt out of care.data – eHealth Insider, 3/10/14

September 2014

Kelsey steps up NHS data drive – Kable Government Computing, 17/9/14

Care.data pilots to be chosen ‘shortly’ – eHealth Insider, 10/9/14

August 2014

Confidentiality costs – Stats Life (newsletter of the Royal Statistical Society), 27/8/14

NHS England looks at expanding care.data extractions to include ‘sensitive’ patient information – Pulse, 19/8/14

Police should have greater access to medical records, says chief constable – Pulse, 11/8/14

Key care.data letters ‘not sent’ – eHealth Insider,  5/8/14

Make care.data opt in or we will opt patients out, say GPs – Pulse, 5/8/14

GPs’ care.data responsibilities amount to ‘good customer service’, says information commissioner – Pulse, 5/8/14

July 2014