care.data missing documents

“The care.data programme has yet to routinely publish agendas, minutes, highlight reports and finalised papers which arise from the care.data Programme Board, something which other programmes, such as NHSmail do routinely. The publication of papers will increase confidence in the programme by demonstrating progress and good governance.”

– HSCIC, November 2014, ‘Background to the decision to publish‘

And yet: [update see below]

  1. Missing: Video of care.data Advisory Group public meeting in London (our copy)
  2. Missing: Video of care.data Advisory Group public meeting in Manchester (our copy)
  3. Missing: January 2014* care.data Programme Board meeting – all documents
  4. Missing: February 2014 care.data Programme Board meeting – all documents
  5. Missing: March 2014 care.data Programme Board meeting – all documents
  6. Missing: April 2014 care.data Programme Board meeting – all documents
  7. Missing: May 2014 care.data Programme Board meeting – all documents
  8. Missing: June 2014 care.data Programme Board meeting – all documents
  9. Missing: July 2014 care.data Programme Board meeting – all documents
  10. Missing: August 2014 care.data Programme Board meeting – all documents
  11. Missing: September 2014 care.data Programme Board meeting – agenda and papers
  12. Missing: January 2015 care.data Programme Board meeting – all documents
  13. Missing: February 2015 care.data Programme Board meeting – all documents
  14. Missing: March 2015 care.data Programme Board meeting – all documents
  15. Missing: April 2015 care.data Programme Board meeting – all documents
  16. Missing: May 2015 care.data Programme Board meeting – all documents
  17. Missing: June 2015 care.data Programme Board meeting – agenda and papers
  18. Missing: July 2015 care.data Programme Board meeting – agenda
  19. Missing: Freedom of Information Act requests for the above – October 2014 Request
  20. Missing: Freedom of Information Act requests about the above – May 2015 Request
  21. Missing: Letter from care.data SRO and Chair of Programme Board, Tim Kelsey, to medConfidential – should be published with June care.data Advisory Group notes, following 24th July meeting.

“This is the most transparent programme I’ve ever worked on”

*We have listed only those papers missing from 2014 onwards, but a care.data Programme Board must have existed for some while before January 2014, given the first application to extract patient data was made (and knocked back by the now-abolished GPES IAG) in February 2013.

 

Update 14/August: A seemingly incomplete dump of documents has now been published and has been collated here pending review: